Priority Setting Database

Explore research priority setting projects worldwide! The database serves both as a source of inspiration for future priority setting projects and as a research tool for unanswered research questions and under-researched topics.

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  • Priorities for Future Research about Screen Use and Adolescent Mental Health: A Participatory Prioritization Study

    topic

    communicationmental healthpediatrics

    location

    United Kingdom

    research focus

    screen use and adolescent mental health

    method

    consultationgroup discussionsurvey

    involved stakeholders

    academics/researcherseducatorsfamily/friends/carerspatients
  • A Delphi Study to Identify Research Priorities Regarding Physical Activity, Sedentary Behavior and Sleep in Pregnancy

    topic

    pregnancy and childbirth

    location

    CanadaAustraliaUnited KingdomIreland

    research focus

    physical activity, sedentary behavior and sleep in pregnancy

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Research Priority Setting with Parents of Students with Learning Exceptionalities and Disabilities

    topic

    neurodevelopmental disorders

    location

    Canada

    research focus

    learning exceptionalities and disabilities of students

    method

    survey

    involved stakeholders

    family/friends/carers
  • Top 10 (Plus 1) Research Priorities for Expectant Families and Those with Children to Age 24 Months in Alberta, Canada: Results from the Family Research Agenda Initiative Setting (FRAISE) Priority Setting Partnership Project

    topic

    pregnancy and childbirth

    location

    Canada

    research focus

    expectant families

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctors
  • Priorities for Research in Child and Adolescent Anxiety and Depression: A Priority Setting Partnership with Youth and Professionals

    topic

    mood disorderspediatrics

    location

    Norway

    research focus

    child and adolescent anxiety and depression

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorspatients
  • Research Priorities for the Management of Complex Fractures: A UK Priority Setting Partnership with the James Lind Alliance

    topic

    injuries

    location

    United Kingdom

    research focus

    complex fractures

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorspatients
  • Pediatric Research Priorities in Healthcare-Associated Infections and Antimicrobial Stewardship

    topic

    infectious and parasitic diseases

    location

    USA

    research focus

    healthcare-associated infections and antimicrobial stewardship

    method

    Delphimeetingsurvey

    involved stakeholders

    academics/researchersdoctors
  • A European Research Agenda for Geriatric Emergency Medicine: A Modified Delphi Study

    topic

    agingemergency medicine

    location

    TurkeyAustriaBelgiumBosnia HerzegovinaCroatiaCyprusCzech RepublicDenmarkFinlandFranceGermanyIcelandIrelandItalyNetherlandsNorwayPolandPortugalRomaniaSlovakiaSloveniaSpainSwedenSwitzerlandUnited Kingdom

    research focus

    geriatric emergency medicine

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnurses
  • Partnering with Survivors & Families to Determine Research Priorities for Adult Out-of-Hospital Cardiac Arrest: A James Lind Alliance Priority Setting Partnership

    topic

    circulatory system

    location

    Canada

    research focus

    adult out-of-hospital cardiac arrest

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Community-Led Priority Setting for Opioid Use Disorder in Pregnancy and Parenting

    topic

    substance use and addictive behaviorspregnancy and childbirth

    location

    USA

    research focus

    opioid use disorder in pregnancy and parenting

    method

    focus group

    involved stakeholders

    allied healthcare professionalspatients
  • Exploring Canadian Veterans‘ Priorities regarding Chronic Pain Research: A Qualitative Study

    topic

    general symptoms, signs and clinical findings

    location

    Canada

    research focus

    chronic pain

    method

    interview

    involved stakeholders

    patients
  • Nurses‘ Priorities for Improving Pregnancy and Birth Care for Individuals with Opioid Use Disorder

    topic

    substance use and addictive behaviorspregnancy and childbirth

    location

    USA

    research focus

    pregnancy and birth care for individuals with opioid use disorder

    method

    focus groupsurvey

    involved stakeholders

    nurses
  • International Research Priorities on the Role of Cognition in Power Mobility Device Use: In Pursuit of Informed Clinical Practices and Knowledge Translation

    topic

    nervous systemphysical mobility and fitness

    location

    CanadaUSAIrelandFranceSweden

    research focus

    cognition in power mobility device use

    method

    workshop

    involved stakeholders

    academics/researchersdoctorsallied healthcare professionalspatients
  • Emergency Medical Services Education Research Priorities during COVID-19: A Modified Delphi Study

    topic

    emergency medicineinfectious and parasitic diseases

    location

    USA

    research focus

    impact of COVID-19 on initial emergency medical services (EMS) education

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnurses
  • Research Priorities for Children with Neurological Impairment and Medical Complexity in High-Income Countries

    topic

    pediatricsneurodevelopmental disorders

    location

    CanadaUSAIrelandUnited KingdomAustraliaChileNetherlandsHong KongSpain

    research focus

    children with neurological impairment and medical complexity

    method

    Delphi

    involved stakeholders

    family/friends/carersdoctors
  • Research Priorities for Exacerbations of COPD

    topic

    respiratory system

    location

    United Kingdom

    research focus

    exacerbations of COPD

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • Research Priorities in Multiple Sclerosis in Latin America: A Multi-Stakeholder Call to Action to Improve Patients Care

    topic

    nervous system

    location

    ArgentinaBrazilColombiaCosta RicaChileEcuadorEl SalvadorGuatemalaMexicoParaguayPanamaPeruDominican RepublicUruguayVenezuela

    research focus

    multiple sclerosis

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Priorities for Research into the Impact of Canine Surgical Sterilisation Programmes for Free-Roaming Dogs: An International Priority Setting Partnership

    topic

    animal health

    location

    international

    research focus

    canine surgical sterilisation programmes for free-roaming dogs

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersnon-governmental organizationsagenciesveterinarian healthcare providerspolicymakers
  • Identifying the Top Research Priorities in Postmastectomy Breast Cancer Reconstruction: A James Lind Alliance Priority Setting Partnership

    topic

    cancer

    location

    Canada

    research focus

    postmastectomy breast cancer reconstruction

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Patient Involvement to Explore Research Prioritisation and Self-Care Management in People with Periodontitis and Diabetes

    topic

    endocrine diseasesdigestive system

    location

    United Kingdom

    research focus

    periodontitis and diabetes

    method

    interviewworkshop

    involved stakeholders

    academics/researcherspatients
  • Identifying Key Priorities for Research to Protect the Consumer with Food Hypersensitivity: A UK Food Standards Agency Priority Setting Exercise

    topic

    nutrition and nutritional disorders

    location

    United Kingdom

    research focus

    food hypersensitivity

    method

    JLA method

    involved stakeholders

    industrypatientsagenciesacademics/researchershealthcare providers
  • Developmental Language Disorder Research Priority Setting Partnership Report

    topic

    neurodevelopmental disorders

    location

    United Kingdom

    research focus

    developmental language disorder

    method

    focus groupsurveyworkshop

    involved stakeholders

    family/friends/carersallied healthcare professionalspatientsfunderseducators
  • Identifying Research Priorities for Occupational Therapy in the UK: A James Lind Alliance Priority Setting Partnership

    topic

    physical mobility and fitness

    location

    United Kingdom

    research focus

    occupational therapy

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalspatients
  • Engaging Multi-Stakeholder Perspectives to Identify Dementia Care Research Priorities

    topic

    neurocognitive disorders

    location

    USA

    research focus

    dementia

    method

    group discussionsurvey

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Use of a Modified Delphi Process to Develop Research Priorities in Major Trauma

    topic

    injuries

    location

    United Kingdom

    research focus

    major trauma

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnursespatients
  • Prioritizing Chinese Medicine Clinical Research Questions in Cancer Palliative Care from Patient and Caregiver Perspectives

    topic

    cancer

    location

    China

    research focus

    cancer palliative care

    method

    workshop

    involved stakeholders

    family/friends/carerspatients
  • Identifying Research Priorities to Improve the Health of Incarcerated Populations: Results of Citizens’ Juries in Australian Prisons

    topic

    public health

    location

    Australia

    research focus

    health of incarcarated populations

    method

    citizens‘ jury

    involved stakeholders

    patients
  • A Clinical Research Priority Setting Study for Issues related to the Use of Methamphetamine and Emerging Drugs of Concern in Australia

    topic

    substance use and addictive behaviors

    location

    Australia

    research focus

    methamphetamine and emerging drugs

    method

    surveyworkshop

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorspatients
  • Shaping Stroke Research to Rebuild Lives. The Stroke Priority Setting Partnership Results for Investment

    topic

    nervous system

    location

    United Kingdom

    research focus

    stroke

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Where Do We Go from Here? Autism Community Priorities for Future Suicide Research. Results from the International Research Priority Setting Exercise 2021

    topic

    neurodevelopmental disorders

    location

    United Kingdom

    research focus

    autism

    method

    focus groupgroup discussionsurveyworkshop

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • A Multistakeholder Exercise to Identify Research and Conservation Priorities for Asian Elephants in China

    topic

    environment

    location

    China

    research focus

    conservation of Asian elephants

    method

    surveyworkshop

    involved stakeholders

    academics/researchersagencieslearnersnon-governmental organizationspolicymakers
  • Setting a Prioritized Agenda to Drive Speech-Language Therapy Research in Health

    topic

    neurodevelopmental disorders

    location

    Australia

    research focus

    speech-language therapy

    method

    group discussionsurvey

    involved stakeholders

    academics/researchersdoctorspatients
  • Defining Research Priorities in Nutrition in a Resource Limited Setting a Delphi Study in Pakistan

    topic

    nutrition and nutritional disorders

    location

    Pakistan

    research focus

    nutrition

    method

    Delphiworkshop

    involved stakeholders

    academics/researchersallied healthcare professionals
  • Clinical Nurses Research Priorities in Hospital Settings: A Delphi Survey

    topic

    nursing and care

    location

    Norway

    research focus

    clinical nursing

    method

    Delphi

    involved stakeholders

    nurses
  • Identifying What Matters Most for the Health of Older Adults in Alberta: Results from a James Lind Alliance Research Priority Setting Partnership

    topic

    aging

    location

    Canada

    research focus

    health of older adults

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Setting the Global Research Agenda for Community-Based HIV Service Delivery through the Faith Sector

    topic

    infectious and parasitic diseaseshealth system

    location

    international

    research focus

    community‑based HIV service delivery through the faith sector

    method

    COHRED approach

    involved stakeholders

    academics/researchershealthcare providersnon-governmental organizationsspiritual service providerspolicymakers
  • Research Priorities for Idiopathic Epilepsy in Dogs: Viewpoints of Owners, General Practice Veterinarians, and Neurology Specialists

    topic

    animal healthnervous system

    location

    United Kingdom

    research focus

    idiopathic epilepsy in dogs

    method

    survey

    involved stakeholders

    family/friends/carersdoctors
  • The Top 10 Research Priorities in Diabetes and Pregnancy according to Women, Support Networks and Healthcare Professionals

    topic

    endocrine diseasespregnancy and childbirth

    location

    United Kingdom

    research focus

    diabetes and pregnancy

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Research Priorities for U.K. Pediatric Critical Care in 2019: Healthcare Professionals‘ and Parents‘ Perspectives

    topic

    nursing and carepediatrics

    location

    United Kingdom

    research focus

    pediatric critical care

    method

    Delphisurvey

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnurses
  • Research Priorities for Coastal Geoscience and Engineering: A Collaborative Exercise in Priority Setting From Australia

    topic

    environment

    location

    Australia

    research focus

    coastal geoscience and engineering

    method

    surveyworkshop

    involved stakeholders

    academics/researcherseducatorsenvironmental practitionerspolicymakersnon-governmental organizations
  • Dutch Patients, Caregivers and Healthcare Professionals Generate First Nationwide Research Agenda for Juvenile Idiopathic Arthritis

    topic

    musculoskeletal system and connective tissue

    location

    Netherlands

    research focus

    juvenile idiopathic arthritis

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • Priorities for Medical Marijuana Research from the Perspective of Physicians, Dispensary Owners/Staff, and Patients: A Survey Study

    topic

    substance use and addictive behaviors

    location

    USA

    research focus

    medical marijuana

    method

    survey

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatientsindustry
  • Research Priorities for Control of Zoonoses in South Africa

    topic

    animal healthinfectious and parasitic diseases

    location

    international

    research focus

    zoonoses

    method

    CHNRI approach

    involved stakeholders

    academics/researchersdoctorsnon-governmental organizations
  • Seascape Ecology: Identifying Research Priorities for an Emerging Ocean Sustainability Science

    topic

    environment

    location

    international

    research focus

    seascape ecology

    method

    Delphi

    involved stakeholders

    academics/researchersagenciesenvironmental practitionersnon-governmental organizationspolicymakers
  • Common Hand and Wrist Conditions: Creation of UK Research Priorities defined by a James Lind Alliance Priority Setting Partnership

    topic

    injuries

    location

    United Kingdom

    research focus

    common conditions affecting hand and wrist

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Setting Research Priorities for Sexual, Reproductive, Maternal, Newborn, Child and Adolescent Health in Humanitarian Settings

    topic

    sexual healthpediatricspregnancy and childbirth

    location

    international

    research focus

    sexual, reproductive, maternal, newborn, child and adolescent health

    method

    CHNRI approach

    involved stakeholders

    academics/researchersagenciesfundersindustrynon-governmental organizationspolicymakers
  • Research Priorities for Rare Neurological Diseases: A Representative View of Patient Representatives and Healthcare Professionals from the European Reference Network for Rare Neurological Diseases

    topic

    public health

    location

    AustraliaAustriaBelgiumBulgariaCzech RepublicFranceGermanyHungaryIrelandItalyLithuaniaMaltaNetherlandsNorwayPolandSloveniaSpainSwedenSwitzerlandUnited Kingdom

    research focus

    rare neurological diseases

    method

    survey

    involved stakeholders

    healthcare providerspatients
  • Research Priorities for Oral Healthcare: Agenda Setting from the Practitioners’ Perspective

    topic

    dentistry

    location

    Netherlands

    research focus

    oral healthcare

    method

    meetingsurvey

    involved stakeholders

    allied healthcare professionalsdoctors
  • Clinical and Research Priorities for Children and Young People with Bronchiectasis: An International Roadmap

    topic

    respiratory system

    location

    international

    research focus

    bronchiectasis

    method

    survey

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Identifying the Research Priorities of Healthcare Professionals in UK Vascular Surgery: Modified Delphi Approach

    topic

    surgery

    location

    United Kingdom

    research focus

    vascular surgery

    method

    Delphi

    involved stakeholders

    doctors
  • Consensus Exercise Identifying Priorities for Research in the Field of General Surgery of Childhood in the UK

    topic

    pediatricssurgery

    location

    United Kingdom

    research focus

    general surgery of childhood

    method

    Delphi

    involved stakeholders

    academics/researchersdoctorsnursespatients
  • Top 10 Research Priorities for U.S. Military en Route Combat Casualty Care

    topic

    injuries

    location

    USA

    research focus

    military en route combat casualty care

    method

    survey

    involved stakeholders

    allied healthcare professionalsdoctorsnurses
  • Priority Setting to Address the Geriatric Pharmacoparadox for Pain Management: A Nursing Home Stakeholder Delphi Study

    topic

    general symptoms, signs and clinical findings

    location

    USA

    research focus

    pain management

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnurses
  • Research Priorities in Maternal and Neonatal Health in Africa: Results using the Child Health and Nutrition Research Initiative Method Involving over 900 Experts Across the Continent

    topic

    pediatricspregnancy and childbirth

    location

    Africa

    research focus

    maternal and neonatal health

    method

    CHNRI approach

    involved stakeholders

    academics/researchershealthcare providersnon-governmental organizationspolicymakers
  • Setting an International Research Agenda for Fear of Cancer Recurrence: An Online Delphi Consensus Study

    topic

    cancer

    location

    JapanSouth KoreaAustraliaDenmarkNetherlandsPortugalRussiaSpainUnited KingdomCanadaMexicoUSA

    research focus

    fear of cancer recurrence

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnurses
  • Priority Research Questions in Atopic Dermatitis: An International Eczema Council eDelphi Consensus

    topic

    skin

    location

    international

    research focus

    atopic dermatitis

    method

    Delphi

    involved stakeholders

    doctors
  • Priority Research and Development Areas for Health Crisis Management Including Emerging Infectious Disease Control: An Expert Questionnaire Survey in Japan

    topic

    public health

    location

    Japan

    research focus

    health crisis management including emerging infectious disease control

    method

    Delphi

    involved stakeholders

    academics/researchersdoctorsindustry
  • Co-Creation of Five Key Research Priorities Across Law Enforcement and Public Health: A Methodological Example and Outcomes

    topic

    public healthlaw

    location

    United Kingdom

    research focus

    law enforcement and public health

    method

    workshop

    involved stakeholders

    academics/researchersallied healthcare professionalsnursespatientspolicymakers
  • Identifying Research Priorities in Adult Day Centers to Support Evidence-Based Care of Vulnerable Older Adults

    topic

    aginghealth system

    location

    USA

    research focus

    quality of services offered in adult day centers

    method

    consultation

    involved stakeholders

    academics/researchershealthcare providerspolicymakers
  • Patient and Public Priorities for Breast Cancer Research: A Qualitative Study in the UK

    topic

    cancer

    location

    United Kingdom

    research focus

    breast cancer

    method

    focus group

    involved stakeholders

    patients
  • Consensus on Research Priorities for Essex & Herts Air Ambulance: A Delphi Study

    topic

    health system

    location

    United Kingdom

    research focus

    air ambulance & emergency medical service

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctors
  • Students’ Top 10 Priorities of Research Uncertainties on Students’ Sleep: A Pragmatic James Lind Alliance Approach

    topic

    public health

    location

    Norway

    research focus

    sleep

    method

    JLA method

    involved stakeholders

    academics/researchershealthcare providerspatients
  • Establishing Research Priorities Related to Osteoarthritis Care via Stakeholder Input from Patients

    topic

    musculoskeletal system and connective tissue

    location

    Denmark

    research focus

    osteoarthritis

    method

    survey

    involved stakeholders

    patients
  • Identifying Suicide and Self-Harm Research Priorities in North West England: A Delphi Study

    topic

    public health

    location

    United Kingdom

    research focus

    suicide and self-harm

    method

    Delphiworkshop

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnon-governmental organizationspatientspolicymakers
  • A Patient-Clinician James Lind Alliance Partnership to Identify Research Priorities for Hyperemesis Gravidarum

    topic

    pregnancy and childbirth

    location

    international

    research focus

    hyperemesis gravidarum

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • A Multi-Stakeholder Approach to the Coproduction of the Research Agenda for Medicines Optimisation

    topic

    public health

    location

    United Kingdom

    research focus

    medicines optimisation

    method

    consultationmeetingworkshop

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorspatients
  • Setting the Health Research Priority Agenda for the Ministry of Health (MoH), Kingdom of Saudi Arabia 2020-2025 Project

    topic

    health research

    location

    Saudi Arabia

    research focus

    health research

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorspolicymakers
  • Equine Pituitary Pars Intermedia Dysfunction: Identifying Research Priorities for Diagnosis, Treatment and Prognosis Through a Priority Setting Partnership

    topic

    animal health

    location

    United Kingdom

    research focus

    pituitary pars intermedia dysfunction (PPID)

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctors
  • What Research Questions Should the Next Generation of Birth Cohort Studies Address? An International Delphi Study of Experts

    topic

    health research

    location

    international

    research focus

    birth cohort studies

    method

    Delphi

    involved stakeholders

    academics/researchershealthcare providers
  • Anastomotic Leak Following Oesophagectomy: Research Priorities from an International Delphi Consensus Study

    topic

    cancer

    location

    international

    research focus

    anastomotic leak outcomes after oesophagectomy for cancer

    method

    Delphi

    involved stakeholders

    doctors
  • Establishing Research Priorities for the Emergency Severiy Index using a Modified Delphi Approach

    topic

    emergency medicine

    location

    USA

    research focus

    emergency severity index

    method

    Delphi

    involved stakeholders

    nurses
  • An International Delphi Survey on Exercise Priorities in CKD

    topic

    genitourinary system

    location

    AustraliaCanadaUSA

    research focus

    chronic kidney disease

    method

    Delphi

    involved stakeholders

    academics/researchersdoctorspatientspolicymakers
  • Community Priority Setting for Fetal Alcohol Spectrum Disorder Research in Australia

    topic

    substance use and addictive behaviorspediatricspregnancy and childbirth

    location

    Australia

    research focus

    fetal alcohol spectrum disorder (FASD)

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Top 10 Research Priorities for People Living with Pulmonary Fibrosis, their Caregivers, Healthcare Professionals and Researchers

    topic

    respiratory system

    location

    Australia

    research focus

    pulmonary fibrosis

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Personalized Cancer Follow-Up Care Pathways: A Delphi Consensus of Research Priorities

    topic

    cancer

    location

    USA

    research focus

    personalized cancer

    method

    Delphi

    involved stakeholders

    academics/researchershealthcare providers
  • Identifying Research Priorities among Patients and Families of Children with Rheumatic Diseases Living in the United States

    topic

    musculoskeletal system and connective tissue

    location

    USA

    research focus

    rheumatic diseases

    method

    focus groupsurvey

    involved stakeholders

    family/friends/carerspatients
  • A Modified Delphi Process to Establish Future Research Priorities in Malignant Oesophagogastric Surgery

    topic

    surgery

    location

    United Kingdom

    research focus

    malignant oesophagogastric surgery

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctors
  • Setting Global Research Priorities for Private Sector Child Health Service Delivery: Results from a CHNRI Exercise

    topic

    pediatrics

    location

    international

    research focus

    child health service delivery

    method

    CHNRI approach

    involved stakeholders

    academics/researchersagenciesfundersnon-governmental organizationspolicymakers
  • Top 10 Priorities for Future Infertility Research: An International Consensus Development Study

    topic

    sexual healthpregnancy and childbirth

    location

    international

    research focus

    male infertility, female and unexplained infertility, medically assisted reproduction and ethics, access and organization of care

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorspatients
  • Developing UK Defence Rehabilitation Research Priorities: A 2020 Clinical Practitioner Engagement Exercise

    topic

    injuries

    location

    United Kingdom

    research focus

    defense rehabilitation

    method

    surveyworkshop

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctors
  • Identifying Research Priorities for Health Professions Education Research in Sub- Saharan Africa using a Modified Delphi Method

    topic

    health educationhealth research

    location

    CongoEthiopiaGhanaKenyaLesothoNamibiaNigeriaSouth AfricaTanzaniaUgandaZambiaZimbabweUSA

    research focus

    health professions education research

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnurses
  • UK Research Priorities for Electronic Cigarettes: A James Lind Alliance Priority Setting Partnership

    topic

    substance use and addictive behaviors

    location

    United Kingdom

    research focus

    electronic cigarettes

    method

    JLA method

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Delphi Consensus on Research Priorities in Tobacco Use and Substance Abuse in Saudi Arabia

    topic

    substance use and addictive behaviors

    location

    Saudi Arabia

    research focus

    tobacco use and substance abuse

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnursesnon-governmental organizations
  • Rare Disease Research Partnership (RAinDRoP): A Collaborative Approach to Identify Research Priorities for Rare Diseases in Ireland

    topic

    public health

    location

    Ireland

    research focus

    rare diseases

    method

    surveyworkshop

    involved stakeholders

    academics/researchersfundersallied healthcare professionalsdoctorspatientspolicymakers
  • Establishing Key Research Questions for the Implementation of Artificial Intelligence in Colonoscopy: A Modified Delphi Method

    topic

    general symptoms, signs and clinical findingstechnology

    location

    international

    research focus

    artificial intelligence in colonoscopy

    method

    Delphi

    involved stakeholders

    academics/researchersdoctors
  • Prioritized Agenda for Mental Health Research in Pediatric Rheumatology from the Childhood Arthritis and Rheumatology Research Alliance Mental Health Workgroup

    topic

    musculoskeletal system and connective tissuepediatrics

    location

    USA

    research focus

    pediatric rheumatology

    method

    survey

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsindustrypatients
  • Identification of Research Priorities in Exercise Oncology: A Consensus Study

    topic

    cancer

    location

    international

    research focus

    exercise oncology

    method

    workshop

    involved stakeholders

    academics/researchersallied healthcare professionals
  • Research Questions that Matter to Us: Priorities of Young People with Chronic Illnesses and their Caregivers

    topic

    public health

    location

    USA

    research focus

    chronic illnesses

    method

    focus group

    involved stakeholders

    family/friends/carerspatients
  • Research Priorities in Cardiovascular Imaging

    topic

    circulatory systemtechnology

    location

    United Kingdom

    research focus

    cardiovascular imaging

    method

    Delphi

    involved stakeholders

    doctors
  • Research Priorities of Caregivers and Individuals with Dementia with Lewy Bodies: An Interview Study

    topic

    neurocognitive disorders

    location

    USA

    research focus

    dementia with Lewy bodies

    method

    interview

    involved stakeholders

    family/friends/carerspatients
  • Research Priorities for Liver Glycogen Storage Disease: An International Priority Setting Partnership with the James Lind Alliance

    topic

    metabolic disorders

    location

    international

    research focus

    liver glycogen storage disease

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Essential Research Priorities in Renal Cancer: A Modified Delphi Consensus Statement

    topic

    cancer

    location

    United Kingdom

    research focus

    renal cancer

    method

    Delphi

    involved stakeholders

    academics/researchersdoctorspatients
  • Identifying Research Priorities in Cardiac Surgery: A Report from the James Lind Alliance Priority Setting Partnership in Adult Heart Surgery

    topic

    circulatory systemsurgery

    location

    United Kingdom

    research focus

    cardiac surgery

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Identifying the Priority Challenges in Trauma Care Delivery for Australian and New Zealand Trauma Clinicians

    topic

    nursing and care

    location

    AustraliaNew Zealand

    research focus

    trauma care delivery

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnurses
  • Identifying Integrated Health Services and Social Care Research Priorities in Kidney Disease in Wales: Research prioritization Exercise

    topic

    genitourinary system

    location

    United Kingdom

    research focus

    chronic kidney disease

    method

    workshop

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorspatients
  • Top Ten Research Priorities for Problematic Knee Arthroplasty

    topic

    surgery

    location

    United Kingdom

    research focus

    knee arthroplasty

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Global Research Priorities for Social, Behavioural and Community Engagement Interventions for Maternal, Newborn and Child Health

    topic

    pediatricspregnancy and childbirth

    location

    international

    research focus

    maternal, newborn and child health

    method

    CHNRI approach

    involved stakeholders

    academics/researchersagencies
  • Using the Delphi Process to Identify Priorities for Dietetic Research in Australia 2020-2030

    topic

    nutrition and nutritional disorders

    location

    Australia

    research focus

    nutrition and dietetic research

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionals
  • A Consensus Building Exercise to Determine Research Priorities for Silver Trauma

    topic

    injuries

    location

    United Kingdom

    research focus

    silver trauma

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnurses
  • Priorities for Collaborative Research using Very Preterm Birth Cohorts

    topic

    pregnancy and childbirth

    location

    international

    research focus

    very preterm birth

    method

    Delphi

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorspatientspolicymakers
  • Listening to Parents to Understand their Priorities for Autism Research

    topic

    neurodevelopmental disorders

    location

    Australia

    research focus

    autism

    method

    group discussionsurvey

    involved stakeholders

    family/friends/carers
  • Research Priorities and Identification of a Health Service Delivery Model for Psoriasis from the UK Psoriasis Priority Setting Partnership

    topic

    skin

    location

    United Kingdom

    research focus

    psoriasis

    method

    JLA method

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Developing a National Health Research Agenda for Lao PDR: Prioritising the Research Needs of Stakeholders

    topic

    health research

    location

    Laos

    research focus

    health research

    method

    Delphiinterviewmeetingsurveyworkshop

    involved stakeholders

    academics/researchersagenciesnon-governmental organizationshealthcare providerspolicymakers
  • Identifying Research Priorities for the Study of Atypical Anorexia Nervosa: A Delphi Study

    topic

    eating disorders

    location

    international

    research focus

    anorexia nervosa

    method

    Delphi

    involved stakeholders

    academics/researchersdoctorspatients
  • Determining Nursing Research Priorities in Lao People’s Democratic Republic: A Modified Delphi Study

    topic

    nursing and care

    location

    Laos

    research focus

    nursing

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsnurses
  • Determining Research Priorities for Young People with Haematological Cancer: A Value-Weighting Approach

    topic

    cancer

    location

    Australia

    research focus

    haematological cancer

    method

    survey

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities for Pregnancy Hypertension: A UK Priority Setting Partnership with the James Lind Alliance

    topic

    pregnancy and childbirth

    location

    United Kingdom

    research focus

    pregnancy hypertension

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Defining a Research Agenda for Layperson Prehospital Hemorrhage Control a Consensus Statement

    topic

    injuries

    location

    international

    research focus

    prehospital hemorrhage control

    method

    Delphi

    involved stakeholders

    agenciesallied healthcare professionalsdoctorsindustrypolicymakers
  • Research Priorities in Infertility and Assisted Reproductive Technology Treatments – A James Lind Alliance Priority Setting Partnership with Brazilian Patients

    topic

    sexual healthpregnancy and childbirth

    location

    Brazil

    research focus

    infertility and assisted reproductive technology treatment

    method

    survey

    involved stakeholders

    patients
  • Research Priorities in Advanced Heart Failure: James Lind Alliance Priority Setting Partnership

    topic

    circulatory system

    location

    United Kingdom

    research focus

    advanced heart failure

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Health Research Priority Setting in Oman: Towards Better Utilization of the Available Resources

    topic

    health research

    location

    Oman

    research focus

    health research

    method

    survey

    involved stakeholders

    academics/researchershealthcare providers
  • Prioritising Target Non-Pharmacological Interventions for Research in Parkinson’s Disease: Achieving Consensus from Key Stakeholders

    topic

    nervous system

    location

    United Kingdom

    research focus

    Parkinson’s disease

    method

    Delphigroup discussion

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Public Priorities for Osteoporosis and Fracture Research: Results from a Focus Group Study

    topic

    musculoskeletal system and connective tissue

    location

    United Kingdom

    research focus

    osteoporosis

    method

    focus group

    involved stakeholders

    patients
  • Setting the Surgical Wound Care Agenda Across Two Healthcare Districts: A Priority Setting Approach

    topic

    nursing and care

    location

    Australia

    research focus

    surgical wound care

    method

    workshop

    involved stakeholders

    healthcare providers
  • The Top 10 Retinoblastoma Research Priorities in Canada as Determined by Patients, Clinicians and Researchers: A Patient-Oriented Priority-Setting Partnership

    topic

    cancer

    location

    Canada

    research focus

    retinoblastoma

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorspatients
  • Research Priorities in Healthcare of Persons Experiencing Homelessness: Outcomes of a National Multi-Disciplinary Stakeholder Discussion in the United Kingdom

    topic

    nursing and care

    location

    United Kingdom

    research focus

    healthcare of persons experiencing homelessness

    method

    workshop

    involved stakeholders

    allied healthcare professionalsdoctorsnurses
  • Setting Priorities for Patient-Centered Surveillance of Drug-Resistant Infections

    topic

    general symptoms, signs and clinical findings

    location

    international

    research focus

    patient-centered antimicrobial resistance surveillance and research

    method

    survey

    involved stakeholders

    academics/researchersdoctors
  • Musculoskeletal Pain Stakeholder Engagement and Partnership Development: Determining Patient-Centered Research Priorities

    topic

    general symptoms, signs and clinical findings

    location

    USA

    research focus

    musculoskeletal pain

    method

    meetingworkshop

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorspatients
  • Top Ten Research Priorities for Pancreatic Cancer Therapy

    topic

    cancer

    location

    Germany

    research focus

    pancreatic cancer therapy

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Research Priorities in Α1-Antitrypsin Deficiency: Results of a Patients’ and Healthcare Providers’ International Survey from the EARCO Clinical Research Collaboration

    topic

    metabolic disorders

    location

    international

    research focus

    Alpha1-antitrypsin deficiency (AATD)

    method

    survey

    involved stakeholders

    family/friends/carersdoctorspatients
  • Identifying Priorities for Physiotherapy Research in the UK: The James Lind Alliance Physiotherapy Priority Setting Partnership

    topic

    physical mobility and fitness

    location

    United Kingdom

    research focus

    physiotherapy

    method

    JLA method

    involved stakeholders

    academics/researcherscitizenseducatorsfamily/friends/carersfundersallied healthcare professionalsdoctorspatientspolicymakers
  • Clinical Management of Woman with Bleeding Disorders: A Survey among European Haemophilia Treatment Centres

    topic

    blood

    location

    international

    research focus

    haemophilia

    method

    survey

    involved stakeholders

    doctors
  • Developing a Patient- and Family-Centered Research Agenda for Hospital Medicine: The Improving Hospital Outcomes through Patient Engagement (i-HOPE) Study

    topic

    nursing and care

    location

    USA

    research focus

    hospital medicine

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Listening to the Autistic Voice: Mental Health Priorities to Guide Research and Practice in Autism from a Stakeholder-Driven Project

    topic

    neurodevelopmental disorders

    location

    USA

    research focus

    autism

    method

    focus groupmeetingsurvey

    involved stakeholders

    academics/researchersfamily/friends/carerspatients
  • Rare Musculoskeletal Diseases in Adults: A Research Priority Setting Partnership with the James Lind Alliance

    topic

    developmental anomalies

    location

    United Kingdom

    research focus

    rare musculoskeletal diseases

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Research Priorities for Rehabilitation and Aging with HIV: A Framework from the Canada International HIV and Rehabilitation Research Collaborative (CIHRRC)

    topic

    infectious and parasitic diseases

    location

    AustraliaUnited KingdomCanadaUSA

    research focus

    rehabilitation and aging with HIV

    method

    workshop

    involved stakeholders

    academics/researcherseducatorsallied healthcare professionalsdoctorslearnerspatients
  • Citizen and Stakeholder Led Priority Setting for Long-Term Care Research: Identifying Research Priorities Within the Translating Research in Elder Care (TREC) Program

    topic

    nursing and care

    location

    Canada

    research focus

    elder care

    method

    JLA method

    involved stakeholders

    agenciesfamily/friends/carersallied healthcare professionalspolicymakers
  • Top 10 Research Priorities for Human Milk Banking and Use of Donor Human Milk: A Partnership Between Parents and Clinicians

    topic

    nursing and carepregnancy and childbirth

    location

    Australia

    research focus

    human milk banking and use of pasteurized donor human milk

    method

    JLA method

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Priority Setting for Research in the Field of Medical Ethics in the Islamic Republic of Iran: A Delphi Study

    topic

    health systemlaw

    location

    Iran

    research focus

    medical ethics

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctors
  • Future Research Prioritization in Cardiac Resynchronization Therapy

    topic

    circulatory system

    location

    USA

    research focus

    cardiac resynchronization therapy

    method

    horizon scansurvey

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorspatientspolicymakers
  • Setting the Research Agenda for Living with and Beyond Cancer with Comorbid Illness: Reflections on a Research prioritization Exercise

    topic

    cancer

    location

    United Kingdom

    research focus

    cancer with comorbid illness

    method

    consultationworkshop

    involved stakeholders

    academics/researchersfamily/friends/carerspatients
  • Priority Setting for Adult Malnutrition and Nutritional Screening in Healthcare: A James Lind Alliance

    topic

    nutrition and nutritional disorders

    location

    United Kingdom

    research focus

    adult malnutrition and nutritional screening

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Engaging Young African American Women Breast Cancer Survivors: A Novel Storytelling Approach to Identify Patient Centred Research Priorities

    topic

    cancer

    location

    USA

    research focus

    breast cancer survivors

    method

    group discussionmeetingworkshop

    involved stakeholders

    academics/researchersfamily/friends/carershealthcare providerspatients
  • A Research Agenda to Improve Patients‘ Experience of Knee Replacement Surgery: A Patient-Oriented Modified Delphi Study of Patients of South Asian Origin in British Columbia

    topic

    surgery

    location

    Canada

    research focus

    total knee arthroplasty

    method

    Delphifocus group

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Health in Preconception, Pregnancy and Postpartum Global Alliance: International Network Pregnancy Priorities for the Prevention of Maternal Obesity and Related Pregnancy and Long-Term Complications

    topic

    pregnancy and childbirth

    location

    international

    research focus

    pregnancy

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Top Ten Priorities for Anesthesia and Perioperative Research: A Report from the Canadian Anesthesia Research Priority Setting Partnership

    topic

    nursing and caresurgery

    location

    Canada

    research focus

    anesthesia and perioperative care

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities in Pediatric Asthma: Results of a Global Survey of Multiple Stakeholder Groups by the Pediatric Asthma in Real Life (PeARL) Think Tank

    topic

    respiratory systempediatrics

    location

    international

    research focus

    pediatric asthma

    method

    survey

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorspatientspolicymakers
  • Filling Gaps in Type 1 Diabetes and Exercise Research: A Scoping Review and Priority-Setting Project

    topic

    endocrine diseases

    location

    Canada

    research focus

    diabetes type 1

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • The National Institute for Health Research Critical Care Research Priority Setting Survey 2018

    topic

    nursing and care

    location

    United Kingdom

    research focus

    critical care

    method

    meetingsurvey

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctors
  • Health System Research Priorities for Children and Youth with Special Health Care Needs

    topic

    nursing and care

    location

    USA

    research focus

    children and youth with special health care needs

    method

    Delphi

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities for Health Care Chaplaincy in the Netherlands: A Delphi Study Among Dutch Chaplains

    topic

    nursing and care

    location

    Netherlands

    research focus

    healthcare chaplaincy

    method

    Delphi

    involved stakeholders

    spiritual service providers
  • Research Priorities in Metastatic Breast Cancer: A James Lind Alliance Priority Setting Partnership

    topic

    cancer

    location

    Canada

    research focus

    metastatic breast cancer

    method

    JLA method

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Research Priorities in Residential Aged Care Services: A Statewide Survey

    topic

    nursing and care

    location

    Australia

    research focus

    residential aged care services

    method

    survey

    involved stakeholders

    allied healthcare professionals
  • Setting a Research Agenda for Vascular Ehlers-Danlos Syndrome using a Patient and Stakeholder Engagement Model

    topic

    developmental anomalies

    location

    USA

    research focus

    vascular Ehlers-Danlos syndrome

    method

    Delphi

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorspatients
  • A Modified AUGIS Delphi Process to Establish Research Priorities in Bariatric and Metabolic Surgery

    topic

    surgery

    location

    United Kingdom

    research focus

    bariatric and metabolic surgery

    method

    Delphi

    involved stakeholders

    doctors
  • Prevention of Child Wasting: Results of a Child Health & Nutrition Research Initiative (CHNRI) prioritization Exercise

    topic

    nutrition and nutritional disorderspediatrics

    location

    international

    research focus

    child wasting

    method

    CHNRI approach

    involved stakeholders

    academics/researchersagenciesnon-governmental organizationspolicymakers
  • Patients, Clinicians and Researchers Working Together to Improve Cardiovascular Health: A Qualitative Study of Barriers and Priorities for Patient-Oriented Research

    topic

    circulatory system

    location

    Canada

    research focus

    cardiovascular health

    method

    workshop

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorsnursespatients
  • Delphi Assessment of Audit and Research Priorities in an Emergency Department

    topic

    emergency medicine

    location

    Australia

    research focus

    emergency medicine

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsnurses
  • Cocreating Research Priorities for Anorexia Nervosa: The Canadian Eating Disorder Priority Setting Partnership

    topic

    eating disorders

    location

    Canada

    research focus

    anorexia nervosa

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Mitochondrial Disease Priority Setting Partnership: Setting Research Priorities with Patients, Carers and Clinicians

    topic

    metabolic disorders

    location

    United Kingdom

    research focus

    mitochondrial disease

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Answering the Right Questions. Addressing Biodiversity Conservation in Post Conflict Colombia

    topic

    environment

    location

    Colombia

    research focus

    biodiversity conservation

    method

    workshop

    involved stakeholders

    academics/researchersnon-governmental organizationspolicymakers
  • Chronic Breathlessness Explanations and Research Priorities: Findings from an International Delphi Survey

    topic

    respiratory system

    location

    Australia

    research focus

    chronic breathlessness

    method

    Delphi

    involved stakeholders

    academics/researchersdoctors
  • Public & Patient Involvement to Guide Research in Wound Care in an Irish Context. A Round Table Report

    topic

    nursing and care

    location

    United Kingdom

    research focus

    wound care

    method

    group discussion

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities of Women at Risk for Preterm Birth: Findings and a Call to Action

    topic

    pregnancy and childbirth

    location

    USA

    research focus

    preterm birth

    method

    focus group

    involved stakeholders

    patients
  • Priorities for Peri-Operative Research in Africa

    topic

    surgery

    location

    Africa

    research focus

    perioperative research

    method

    Delphi

    involved stakeholders

    doctors
  • Global Water, Sanitation and Hygiene Research Priorities and Learning Challenges under Sustainable Development Goal 6

    topic

    environment

    location

    international

    research focus

    global water, sanitation and hygiene

    method

    survey

    involved stakeholders

    agencieseducatorsnon-governmental organizationspolicymakers
  • Educational Research Priorities for Pediatric Physical Therapy: A Consensus Study

    topic

    pediatricsphysical mobility and fitnesshealth education

    location

    USA

    research focus

    educational research for pediatric physical therapy

    method

    Delphi

    involved stakeholders

    allied healthcare professionals
  • A Modified AUGIS Delphi Process to Establish Future Research Priorities in Benign Upper Gastrointestinal Surgery

    topic

    surgery

    location

    United Kingdom

    research focus

    benign upper gastrointestinal surgery

    method

    Delphi

    involved stakeholders

    doctors
  • The First UK National Blepharospasm Patient and Public Involvement Day; Identifying Priorities

    topic

    nervous system

    location

    United Kingdom

    research focus

    blepharospasm

    method

    surveyworkshop

    involved stakeholders

    citizenspatients
  • Identification of Research Priorities in Infertility and Assisted Reproduction: An International, Multicenter Study

    topic

    sexual healthpregnancy and childbirth

    location

    DenmarkItalySpainBrazilColombia

    research focus

    infertility and assisted reproduction

    method

    survey

    involved stakeholders

    patients
  • Nursing Research Priorities in Critical Care, Pulmonary, and Sleep: International Delphi Survey of Nurses, Patients, and Caregivers

    topic

    nursing and care

    location

    international

    research focus

    nursing

    method

    Delphiworkshop

    involved stakeholders

    family/friends/carersnursespatients
  • Identifying Research Priorities in Eating Disorders: A Delphi Study Building Consensus Across Clinicians, Researchers, Consumers, and Carers in Australia

    topic

    eating disorders

    location

    Australia

    research focus

    eating disorders

    method

    Delphi

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorspatients
  • Identifying Nursing Research Priorities in Vietnam: A Modified Delphi Study

    topic

    nursing and care

    location

    Vietnam

    research focus

    nursing

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsnurses
  • Top Research Priorities for Preterm Birth: Results of a prioritization Partnership Between People Affected by Preterm Birth and Healthcare Professionals

    topic

    pregnancy and childbirth

    location

    IrelandUnited Kingdom

    research focus

    preterm birth

    method

    JLA method

    involved stakeholders

    academics/researchersdoctorspatients
  • Physical Activity for People with Chronic Kidney Disease: An International Survey of Nephrologist Practice Patterns and Research Priorities

    topic

    genitourinary systemphysical mobility and fitness

    location

    AustraliaNew ZealandCanada

    research focus

    physical activity for people with chronic kidney disease

    method

    survey

    involved stakeholders

    doctors
  • Research Priorities for the Management of Broken Bones of the Upper Limb in People over 50: A UK Priority Setting Partnership with the James Lind Alliance

    topic

    injuries

    location

    United Kingdom

    research focus

    management of broken bones of the upper limb

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Health in Preconception, Pregnancy and Postpartum Global Alliance: International Network Preconception Research Priorities for the Prevention of Maternal Obesity and Related Pregnancy and Long-Term Complications

    topic

    pregnancy and childbirth

    location

    international

    research focus

    preconception

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Prioritizing Chinese Medicine Clinical Research Questions in Cancer Palliative Care: International Delphi Survey

    topic

    cancer

    location

    AsiaAustraliaEuropeNorth America

    research focus

    cancer palliative care

    method

    consultationDelphisurvey

    involved stakeholders

    allied healthcare professionalsdoctorsnurses
  • Setting Priorities in Child Health Research in India for 2016-2025: A CHNRI Exercise Undertaken by the Indian Council for Medical Research and INCLEN Trust

    topic

    pediatrics

    location

    India

    research focus

    child health

    method

    CHNRI approach

    involved stakeholders

    academics/researchersallied healthcare professionalsfunderspolicymakersnon-governmental organizations
  • Research Priorities Set by People with OCD and OCD Researchers: Do the Commonalities Outweigh the Differences?

    topic

    obsessive-compulsive disorders

    location

    Germany

    research focus

    obsessive-compulsive disorder

    method

    survey

    involved stakeholders

    allied healthcare professionalspatients
  • Future Research Priorities for Lichen Sclerosus – Results of a James Lind Alliance Priority Setting Partnership

    topic

    skin

    location

    international

    research focus

    lichen sclerosus

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • Exploring Research Priorities of Parents Who Have Children with Down Syndrome, Cleft Lip with or Without Cleft Palate, Congenital Heart Defects, and Spina Bifida Using ConnectEpeople: A Social Media Coproduction Research Study

    topic

    developmental anomaliespediatrics

    location

    South AfricaIndiaTurkeyUnited Arab EmiratesBulgariaCroatiaGermanyIrelandLithuaniaNetherlandsPolandPortugalSpainUnited KingdomUSAPanamaPeru

    research focus

    children with down syndrome, cleft lip with or without cleft palate, congenital heart defects and spina bifida

    method

    survey

    involved stakeholders

    family/friends/carers
  • Research Priorities in Children Requiring Elective Surgery for Conditions Affecting the Lower Limbs: A James Lind Alliance Priority Setting Partnership

    topic

    pediatricssurgery

    location

    United Kingdom

    research focus

    elective surgery of children with conditions affecting the lower limbs

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Identifying and Prioritising Unanswered Research Questions for People with Hyperacusis: James Lind Alliance Hyperacusis Priority Setting Partnership

    topic

    ear

    location

    international

    research focus

    hyperacusis

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Partnering for Pain: A Priority Setting Partnership to Identify Patient-Oriented Research Priorities for Pediatric Chronic Pain in Canada

    topic

    pediatrics

    location

    Canada

    research focus

    pediatric chronic pain

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • Setting Research Priorities on Multiple Micronutrient Supplementation in Pregnancy

    topic

    nutrition and nutritional disorderspregnancy and childbirth

    location

    international

    research focus

    multiple micronutrient supplementation in pregnancy

    method

    CHNRI approach

    involved stakeholders

    academics/researchersagenciesnon-governmental organizations
  • General Practice Research Priority Setting in Australia. Informing a Research Agenda to Deliver Best Patient Care

    topic

    public health

    location

    Australia

    research focus

    general practice

    method

    Delphi

    involved stakeholders

    academics/researcherseducatorsfundersallied healthcare professionalsnurses
  • Striding Ahead – Setting the Foot Health Research Priorities for the Future

    topic

    injuries

    location

    United Kingdom

    research focus

    foot health

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • Joint Production of Research Priorities to Improve the Lives of Those with Childhood Onset Conditions that Impair Learning: The James Lind Alliance Priority Setting Partnership for ‘learning Difficulties

    topic

    neurodevelopmental disorderspediatrics

    location

    United Kingdom

    research focus

    childhood-onset conditions that impair learning

    method

    JLA method

    involved stakeholders

    educatorsfamily/friends/carersallied healthcare professionalsdoctorspatients
  • What are the Most Important Unanswered Research Questions in Trial Retention? A James Lind Alliance Priority Setting Partnership: The PRioRiTy II (Prioritising Retention in Randomised Trials) Study

    topic

    health research

    location

    United Kingdom

    research focus

    retention in randomized trials

    method

    JLA method

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorspatients
  • Research Priorities for the Future Health of Multiples and their Families: The Global Twins and Multiples Priority Setting Partnership

    topic

    health research

    location

    international

    research focus

    health research for multiples

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Identifying Research Priorities for Psychosocial Support Programs in Humanitarian Settings

    topic

    public health

    location

    international

    research focus

    psychosocial support programs in humanitarian settings

    method

    meetingwebinar

    involved stakeholders

    academics/researchersnon-governmental organizationspolicymakers
  • Communication Change in ALS: Engaging People Living with ALS and their Partners in Future Research

    topic

    nervous system

    location

    United Kingdom

    research focus

    amyotrophic lateral sclerosis (ALS)

    method

    focus group

    involved stakeholders

    family/friends/carerspatients
  • Identifying Research Questions for the Conservation of the Cape Floristic Region

    topic

    environment

    location

    South Africa

    research focus

    conservation of the Cape Floristic Region

    method

    survey

    involved stakeholders

    academics/researchersenvironmental practitionersnon-governmental organizationspolicymakers
  • Older Adults in Disaster and Emergency Management: What are the Priority Research Areas in Australia?

    topic

    emergency medicine

    location

    Australia

    research focus

    disaster and emergency management

    method

    Delphi

    involved stakeholders

    agenciesnon-governmental organizationsallied healthcare professionalspatients
  • Top Ten Research Priorities for Detecting Cancer Early

    topic

    cancer

    location

    United Kingdom

    research focus

    early cancer detection

    method

    JLA method

    involved stakeholders

    citizensfamily/friends/carershealthcare providerspatients
  • Nursing Research Priorities in the Pediatric Emergency Care Applied Research Network (PECARN): Reaching Consensus Through the Delphi Method

    topic

    emergency medicinepediatrics

    location

    USA

    research focus

    pediatric emergency care

    method

    Delphi

    involved stakeholders

    nurses
  • Research Priorities for Accelerating Progress Toward Measles and Rubella Elimination Identified by a Cross-Sectional Web-Based Survey

    topic

    infectious and parasitic diseases

    location

    international

    research focus

    measles and rubella elimination

    method

    surveywebinar

    involved stakeholders

    academics/researchersagenciespolicymakers
  • Accelerating Measles and Rubella Elimination Through Research and Innovation – Findings from the Measles & Rubella Initiative Research Prioritization Process, 2016

    topic

    infectious and parasitic diseases

    location

    international

    research focus

    measles and rubella elimination

    method

    meetingsurvey

    involved stakeholders

    academics/researchershealthcare providers
  • Patient-Centered Research Priorities: A Mixed-Methods Approach from the Colorado Children’s Outcomes Network (COCONet)

    topic

    pediatrics

    location

    USA

    research focus

    pediatric health

    method

    focus groupinterviewsurvey

    involved stakeholders

    academics/researchersnon-governmental organizationsfamily/friends/carersallied healthcare professionalsdoctorspatientspolicymakers
  • Development of ASMBS Research Agenda for Bariatric Surgery using the Delphi Methodology

    topic

    surgery

    location

    USA

    research focus

    bariatric surgery

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Engaging Patients and Caregivers in Research for Pediatric Inflammatory Bowel Disease: Top 10 Research Priorities

    topic

    digestive systempediatrics

    location

    Canada

    research focus

    pediatric inflammatory bowel disease

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities in Pediatric Onco‑Critical Care: An International Delphi Consensus Study

    topic

    cancerpediatrics

    location

    BelgiumDenmarkFranceGermanyItalyNetherlandsNorwaySpainSwedenSwitzerlandUnited Kingdom

    research focus

    pediatric onco-critical care

    method

    Delphi

    involved stakeholders

    doctors
  • Patient-Centered Model for Protein-Energy Wasting: Stakeholder Deliberative Panels

    topic

    nutrition and nutritional disorders

    location

    USA

    research focus

    protein-energy wasting

    method

    group discussion

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatientssocial workers
  • Top Research Priorities in Healthcare-Associated Infection in the UK

    topic

    infectious and parasitic diseasesnursing and care

    location

    United Kingdom

    research focus

    healthcare-associated infections

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities for European Paediatric Emergency Medicine

    topic

    emergency medicinepediatrics

    location

    IsraelTurkeyAustriaBelgiumFranceGermanyHungaryItalyLatviaLithuaniaMaltaNetherlandsPortugalSpainSwedenSwitzerlandUnited Kingdom

    research focus

    pediatric emergency medicine

    method

    Delphi

    involved stakeholders

    doctors
  • Primary Care Financing: A Systematic Assessment of Research Priorities in Low- And Middle-Income Countries

    topic

    nursing and care

    location

    international

    research focus

    primary care financing

    method

    Delphiworkshop

    involved stakeholders

    academics/researchersdoctorsnursespolicymakers
  • Research and Knowledge Transfer Priorities in Developmental Coordination Disorder: Results from Consultations with Multiple Stakeholders

    topic

    neurodevelopmental disorders

    location

    Canada

    research focus

    developmental coordination disorder

    method

    group discussionsurvey

    involved stakeholders

    family/friends/carerseducatorshealthcare providerspatients
  • Research Priorities for Young People with Cancer: A UK Priority Setting Partnership with the James Lind Alliance

    topic

    cancer

    location

    United Kingdom

    research focus

    cancer

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Consensus in Bladder Cancer Research Priorities Between Patients and Healthcare Professionals Using a Four-Stage Modified Delphi Method

    topic

    cancer

    location

    United Kingdom

    research focus

    bladder cancer

    method

    Delphifocus groupmeeting

    involved stakeholders

    doctorsnursespatients
  • Patient and Caregiver Perceptions of Lymphoma Care and Research Opportunities: A Qualitative Study

    topic

    cancer

    location

    USA

    research focus

    lymphoma

    method

    focus groupinterview

    involved stakeholders

    family/friends/carerspatients
  • Developing a Practice-Based Research Agenda for Grief and Bereavement Care

    topic

    nursing and care

    location

    Australia

    research focus

    grief and bereavement care

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsnursesspiritual service providers
  • What Matters Most to Patients About Primary Healthcare: Mixed-Methods Patient Priority Setting Exercises Within the PREFeR (PRioritiEs for Research) Project

    topic

    nursing and care

    location

    Canada

    research focus

    primary healthcare

    method

    meetingsurveyworkshop

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnursespatients
  • Towards Sustainable Environmental Quality: Priority Research Questions for the Australasian Region of Oceania

    topic

    environment

    location

    international

    research focus

    sustainable environmental quality

    method

    surveyworkshop

    involved stakeholders

    academics/researchersbusiness professionalscitizenspolicymakers
  • Research Priorities in Childhood-Onset Lupus: Results of a Multidisciplinary Prioritization Exercise

    topic

    respiratory systempediatrics

    location

    USA

    research focus

    childhood-onset systemic erythematosus lupus

    method

    survey

    involved stakeholders

    doctors
  • The „Top 10“ Research and Development Priorities for Battlefield Surgical Care: Results from the Committee on Surgical Combat Casualty Care Research Gap Analysis

    topic

    nursing and care

    location

    USA

    research focus

    battlefield surgical care

    method

    survey

    involved stakeholders

    academics/researchersdoctorsnurses
  • Creating a Locally Driven Research Agenda for the Ethnic Minorities of Eastern Myanmar

    topic

    public health

    location

    Myanmar

    research focus

    public health

    method

    workshop

    involved stakeholders

    academics/researchershealthcare providers
  • Delphi Study to Identify Key Features of Community-Based Child and Adolescent Mental Health Services in the East of England

    topic

    mental healthpediatrics

    location

    United Kingdom

    research focus

    delivery of community-based child and adolescent mental health services

    method

    Delphi

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Lymphedema Research Prioritization Partnership: A Collaborative Approach to Setting Research Priorities for Lymphedema Management

    topic

    circulatory system

    location

    United Kingdom

    research focus

    lymphedema

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • Needs Assessment for Cooperative Extension Dairy Programs in California

    topic

    agriculture

    location

    USA

    research focus

    dairy

    method

    survey

    involved stakeholders

    agriculturists
  • Identifying Research Priorities for Older People’s Mental Health Services

    topic

    mental health

    location

    United Kingdom

    research focus

    mental health services

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities for the Pan-Canadian Oncology Symptom Triage and Remote Support Practice Guides: A Modifie Nominal Group Consensus

    topic

    cancer

    location

    Canada

    research focus

    cancer symptom management

    method

    meeting

    involved stakeholders

    academics/researchersdoctorspatientspolicymakers
  • Practice-Based Research Agenda Priorities Selected by Patients: Findings from a Dental Practice-Based Research Network

    topic

    dentistry

    location

    Japan

    research focus

    dental practice

    method

    survey

    involved stakeholders

    patients
  • Deprescribing: Future Directions for Research

    topic

    public health

    location

    international

    research focus

    deprescribing

    method

    workshop

    involved stakeholders

    academics/researchersdoctorspolicymakers
  • Research Agenda of the Oncology Nursing Society: 2019 – 2022

    topic

    nursing and care

    location

    USA

    research focus

    oncology nursing

    method

    interviewsurvey

    involved stakeholders

    nurses
  • Research Priorities in the Field of Patient Safety in Iran: Results of a Delphi Study

    topic

    health and patient safety

    location

    Iran

    research focus

    patient safety

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionalsnursespolicymakers
  • Using Research Priority-Setting to Guide Bridging the Implementation Gap in Countries – A Case Study of the Uganda Newborn Research Priorities in the SDG Era

    topic

    pediatrics

    location

    Uganda

    research focus

    newborn health

    method

    CHNRI approach

    involved stakeholders

    academics/researchersfundersallied healthcare professionalsdoctorspolicymakers
  • Setting Priorities for Health Education Research: A Mixed Methods Study

    topic

    health education

    location

    Australia

    research focus

    health education

    method

    group discussionsurvey

    involved stakeholders

    academics/researchersdoctorslearnerspatients
  • Prioritizing Research Gaps for National Conservation Management and Policy: The Managers‘ Perspective in Estonia

    topic

    environment

    location

    Estonia

    research focus

    national conservation management and policy

    method

    workshop

    involved stakeholders

    agenciesenvironmental practitionerspolicymakers
  • Development of a Research Agenda for General Practice Based on Knowledge Gaps Identified in Dutch Guidelines and Input from 48 Stakeholders

    topic

    public health

    location

    Netherlands

    research focus

    general practice

    method

    consultationsurvey

    involved stakeholders

    academics/researchersagenciesfunderspatients
  • Needs Assessment and Research Priorities in the Oral and Dental Health with Health Promotion Approach in Iran

    topic

    dentistry

    location

    Iran

    research focus

    oral and dental health

    method

    COHRED approach

    involved stakeholders

    allied healthcare professionalspatientspolicymakers
  • Developing a Research Agenda for Adult Palliative Care: A Modified Delphi Study

    topic

    nursing and care

    location

    Australia

    research focus

    adult palliative care

    method

    Delphi

    involved stakeholders

    academics/researchersdoctors
  • Beyond the Expected: Identifying Broad Research Priorities of Researchers and the Cystic Fibrosis Community

    topic

    respiratory system

    location

    USA

    research focus

    cystic fibrosis

    method

    survey

    involved stakeholders

    academics/researchersfamily/friends/carerspatients
  • Seniors‘ Health in Alberta: Asking the Right Questions of Future Research

    topic

    aging

    location

    Canada

    research focus

    seniors health

    method

    JLA method

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Developing Population Health Research Priorities in Asian City State: Results from a Multi-Step Participatory Community Engagement

    topic

    public health

    location

    Singapore

    research focus

    population health

    method

    focus groupinterviewsurvey

    involved stakeholders

    academics/researchersagenciesallied healthcare professionalsdoctorsnurses
  • Research Priorities in Evidence-Based Nursing Care: A Delphi Survey

    topic

    nursing and care

    location

    Iran

    research focus

    nursing care

    method

    Delphi

    involved stakeholders

    nurses
  • Patient Priorities in Herpes Simplex Keratitis

    topic

    infectious and parasitic diseases

    location

    United Kingdom

    research focus

    herpes simplex keratitis

    method

    interviewsurvey

    involved stakeholders

    patients
  • The Top 10 Research Priorities in Bleeding Disorders: A James Lind Alliance Priority Setting Partnership

    topic

    blood

    location

    United Kingdom

    research focus

    bleeding disorders

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • The Scleroderma Research Topics Survey for Patients and Health Care Professionals: A Scleroderma Patient-Centered Intervention Network Project

    topic

    skin

    location

    AustraliaFranceSpainUnited KingdomCanadaMexicoUSA

    research focus

    scleroderma

    method

    survey

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorspatients
  • Research Priorities in Post-Acute and Long-Term Care: Results of a Stakeholder Needs Assessment

    topic

    nursing and care

    location

    USA

    research focus

    post-acute and long-term care

    method

    focus groupinterviewsurvey

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Prioritisation of Research Questions about Maternal Birth Injuries

    topic

    pregnancy and childbirth

    location

    Sweden

    research focus

    maternal birth injuries

    method

    JLA method

    involved stakeholders

    allied healthcare professionalsdoctorsnursespatients
  • Priorities for Research on Social Services: Perspectives from Users, Policy-Makers and Practitioners

    topic

    social work

    location

    Sweden

    research focus

    social services

    method

    JLA method

    involved stakeholders

    family/friends/carerspatientssocial workers
  • Priorities for Research in Multiple Conditions in Later Life (Multi-Morbidity): Findings from a James Lind Alliance Priority Setting Partnership

    topic

    agingpublic health

    location

    United Kingdom

    research focus

    multiple conditions in later life (multi-morbidity)

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • What are the Research Priorities for Idiopathic Intracranial Hypertension? A Priority Setting Partnership Between Patients and Healthcare Professionals

    topic

    nervous system

    location

    United Kingdom

    research focus

    idiopathic intracranial hypertension

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Reviewing Research Priorities of the Leprosy Research Initiative (LRI): A Stakeholder’s Consultation

    topic

    infectious and parasitic diseases

    location

    international

    research focus

    leprosy

    method

    Delphifocus groupinterviewsurvey

    involved stakeholders

    academics/researchershealthcare providersnon-governmental organizationspatientspolicymakers
  • Use of a Modified Delphi Approach to Develop Research Priorities in HPB Surgery Across the United Kingdom

    topic

    surgery

    location

    United Kingdom

    research focus

    hepato-pancreato-biliary surgery

    method

    Delphi

    involved stakeholders

    doctors
  • Top Research Priorities in Liver and Gallbladder Disorders in the UK

    topic

    digestive system

    location

    United Kingdom

    research focus

    gallbladder disorders and liver disorders

    method

    JLA method

    involved stakeholders

    citizensfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • The Canadian Frailty Priority Setting Partnership: Research Priorities for Older Adults Living with Frailty

    topic

    aginggeneral symptoms, signs and clinical findings

    location

    Canada

    research focus

    frailty

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Hyperhidrosis Priority Setting Partnership

    topic

    skin

    location

    United Kingdom

    research focus

    hyperhidrosis

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • A Research Agenda for Fear of Cancer Recurrence: A Delphi Study Conducted in Australia

    topic

    cancer

    location

    Australia

    research focus

    fear of cancer recurrence

    method

    Delphifocus groupsurvey

    involved stakeholders

    academics/researchersdoctorspatients
  • Using a Delphi Survey to Develop Clinical Nursing Research Priorities Among Nursing Management

    topic

    nursing and care

    location

    USA

    research focus

    clinical nursing

    method

    Delphi

    involved stakeholders

    nurses
  • Research Priorities of Clinical Nurses and Midwives in the Eastern Mediterranean Region: A Mixed Methods Study

    topic

    nursing and carepregnancy and childbirth

    location

    EgyptOmanSaudi Arabia

    research focus

    clinical nursing and midwifery

    method

    focus group

    involved stakeholders

    nurses
  • Research Priorities in Single-Ventricle Heart Conditions: A United Kingdom National Study

    topic

    circulatory system

    location

    United Kingdom

    research focus

    single-ventricle heart conditions

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carershealthcare providerspatients
  • The Prioritized Research Agenda for the Athletic Training Profession: A Report from the Strategic Alliance Research Agenda Task Force

    topic

    physical mobility and fitness

    location

    USA

    research focus

    athletic training profession

    method

    focus groupsurvey

    involved stakeholders

    allied healthcare professionals
  • Research Priorities of People Living with Turner Syndrome

    topic

    developmental anomalies

    location

    USA

    research focus

    Turner syndrome

    method

    survey

    involved stakeholders

    family/friends/carerspatients
  • Supporting Ageing Well Research: Findings from a Research Priority Setting Exercise

    topic

    aging

    location

    New Zealand

    research focus

    ageing well

    method

    workshop

    involved stakeholders

    academics/researchershealthcare providersnon-governmental organizations
  • Setting Priorities for Research in Blood Donation and Transfusion: Outcome of the James Lind Alliance Priority-Setting Partnership

    topic

    organs and tissues

    location

    United Kingdom

    research focus

    blood donation and transfusion

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorsnursespatients
  • Priorities for Pediatric Patient Safety Research

    topic

    pediatricshealth and patient safety

    location

    USA

    research focus

    pediatric patient safety

    method

    interviewsurvey

    involved stakeholders

    allied healthcare professionalsdoctors
  • Engaging Patients in Health Care Epidemiology Research: A Case Example

    topic

    infectious and parasitic diseasesnursing and care

    location

    USA

    research focus

    healthcare-associated infections

    method

    group discussion

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorspatients
  • Setting a Research Agenda for Pediatric Complementary and Integrative Medicine: A Consensus Approach

    topic

    pediatrics

    location

    international

    research focus

    pediatric use of complementary medicine

    method

    Delphi

    involved stakeholders

    academics/researcherseducatorsallied healthcare professionalspolicymakers
  • Nurse-Identified Patient Care and Health Services Research Priorities in the United Arab Emirates: A Delphi Study

    topic

    nursing and care

    location

    United Arab Emirates

    research focus

    patient care and health services

    method

    Delphi

    involved stakeholders

    nurses
  • Research Prioritization of Interventions for the Primary Prevention of Preterm Birth: An International Survey

    topic

    pregnancy and childbirth

    location

    international

    research focus

    preterm birth

    method

    survey

    involved stakeholders

    academics/researchersfundersdoctorsnursesnon-governmental organizationspatientspolicymakers
  • Research in Haematological Cancers: What Do Patients in the Netherlands Prioritise?

    topic

    cancer

    location

    Netherlands

    research focus

    haematological cancer

    method

    focus groupinterviewmeetingsurvey

    involved stakeholders

    academics/researchersfundersallied healthcare professionalsdoctorspatientspolicymakers
  • A Lung Cancer Research Agenda that Reflects the Diverse Perspectives of Community Stakeholders: Process and Outcomes of the SEED Method

    topic

    cancer

    location

    USA

    research focus

    lung cancer outcomes

    method

    meeting

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Prioritizing Research for Patients Requiring Surgery in Low- And Middle-Income Countries

    topic

    surgery

    location

    international

    research focus

    surgery

    method

    Delphiworkshop

    involved stakeholders

    academics/researchersdoctorspatients
  • Examining Management and Research Priorities in Patients with Polymyalgia Rheumatica: A Primary Care Questionnaire Survey

    topic

    musculoskeletal system and connective tissue

    location

    United Kingdom

    research focus

    polymyalgia rheumatica

    method

    survey

    involved stakeholders

    patients
  • Engaging Patients and Caregivers in Establishing Research Priorities for Aortic Dissection

    topic

    circulatory system

    location

    Sweden

    research focus

    aortic dissection

    method

    surveyworkshop

    involved stakeholders

    family/friends/carersdoctorsnursespatients
  • Agreeing on Global Research Priorities for Medication Safety: An International prioritization Exercise

    topic

    health and patient safety

    location

    international

    research focus

    medication safety

    method

    CHNRI approach

    involved stakeholders

    academics/researchersagencies
  • Global Research Priorities to Accelerate Programming to Improve Early Childhood Development in the Sustainable Development Era: A CHNRI Exercise

    topic

    pediatrics

    location

    international

    research focus

    early childhood development

    method

    CHNRI approach

    involved stakeholders

    academics/researchershealthcare providerspolicymakers
  • Primary Care Research Priorities in Low- And Middle-Income Countries

    topic

    nursing and care

    location

    international

    research focus

    primary care

    method

    Delphi

    involved stakeholders

    academics/researchersdoctorsnurses
  • Setting Priorities in Childhood Cancer in Low Income Countries Using Nominal Group Technique: Experience from an International Childhood Cancer Forum Exercise in Bangladesh

    topic

    cancer

    location

    international

    research focus

    childhood cancer

    method

    workshop

    involved stakeholders

    academics/researchershealthcare providerspolicymakers
  • Tell Us! What Questions about Accidental Injuries Does Research Need to Answer?

    topic

    injuries

    location

    AustriaGermanyUSA

    research focus

    accidental injuries

    method

    interviewsurveyworkshop

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Development of Advance Care Planning Research Priorities: A Call to Action

    topic

    nursing and care

    location

    international

    research focus

    advance care planning

    method

    focus groupsurvey

    involved stakeholders

    academics/researchersdoctorsnursespolicymakersspiritual service providers
  • Mental Health Research Priorities in Australia: A Consumer and Carer Agenda

    topic

    mental health

    location

    Australia

    research focus

    mental health

    method

    group discussionsurvey

    involved stakeholders

    family/friends/carerspatients
  • Pediatric Emergency Research Canada (PERC): Patient/Family-Informed Research Priorities for Pediatric Emergency Medicine

    topic

    emergency medicinepediatrics

    location

    Canada

    research focus

    pediatric emergency medicine

    method

    Delphimeeting

    involved stakeholders

    educatorsfamily/friends/carersallied healthcare professionalsdoctorsnurseslearners
  • Establishing Research Priorities to Improve the One Health Efficacy of Australian General Practitioners and Veterinarians with Regard to Zoonoses: A Modified Delphi Survey

    topic

    animal healthinfectious and parasitic diseases

    location

    Australia

    research focus

    zoonoses

    method

    Delphi

    involved stakeholders

    academics/researchersveterinarian healthcare providers
  • Members of Minority and Underserved Communities Set Priorities for Health Research

    topic

    health research

    location

    USA

    research focus

    health research

    method

    focus group

    involved stakeholders

    patients
  • Priorities for Adult Social Work Research. Results from the James Lind Alliance Priority Setting Partnership for Adult Social Work

    topic

    social work

    location

    United Kingdom

    research focus

    adult social work

    method

    JLA method

    involved stakeholders

    healthcare providerssocial workers
  • Developing More Participatory and Accountable Institutions for Health: Identifying Health System Research Priorities for the Sustainable Development Goal-Era

    topic

    health system

    location

    international

    research focus

    health policy and health systems

    method

    focus groupinterviewsurvey

    involved stakeholders

    policymakers
  • Research Priorities for Children and Young People’s Mental Health: Interventions and Services

    topic

    mental healthpediatrics

    location

    United Kingdom

    research focus

    mental health in children and young people

    method

    JLA method

    involved stakeholders

    family/friends/carerseducatorsallied healthcare professionalsdoctorsnursespatients
  • International Consensus on Military Research Priorities and Gaps – Survey Results from the 4th International Congress on Soldiers‘ Physical Performance

    topic

    physical mobility and fitness

    location

    international

    research focus

    military personnel’s health and physical performance

    method

    survey

    involved stakeholders

    defense service providersallied healthcare professionalsdoctors
  • Identifying Top 10 Primary Care Research Priorities from International Stakeholders using a Modified Delphi Method

    topic

    nursing and care

    location

    international

    research focus

    primary care

    method

    JLA method

    involved stakeholders

    academics/researcherscitizensdoctorspolicymakers
  • Current Research Priorities for UK Occupational Physicians and Occupational Health Researchers: A Modified Delphi Study

    topic

    public healthhealth and patient safety

    location

    United Kingdom

    research focus

    occupational health

    method

    Delphi

    involved stakeholders

    academics/researchersallied healthcare professionals
  • A Research Agenda for Bipolar Disorder Developed from a Patients‘ Perspective

    topic

    mood disorders

    location

    Netherlands

    research focus

    bipolar disorder

    method

    focus groupsurvey

    involved stakeholders

    patients
  • Research Priorities for Optimizing Long Term Community Integration after Brain Injury

    topic

    injuries

    location

    Canada

    research focus

    long-term community integration after brain injury

    method

    workshop

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnursespatients
  • Identifying Health Policy and Systems Research Priorities on Multisectoral Collaboration for Health in Low-Income and Middle-Income Countries

    topic

    health system

    location

    international

    research focus

    health policy and health systems

    method

    focus groupinterviewsurvey

    involved stakeholders

    academics/researcherspolicymakers
  • A Health Equity Research Agenda for India: Results of a Consultative Exercise

    topic

    health system

    location

    India

    research focus

    health equity

    method

    consultationmeeting

    involved stakeholders

    academics/researchersnon-governmental organizationspolicymakers
  • Research Priorities in Fragility Fractures of the Lower Limb and Pelvis: A UK Priority Setting Partnership with the James Lind Alliance

    topic

    injuries

    location

    United Kingdom

    research focus

    fragility fractures of the lower limb and pelvis

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Engaging Stakeholders to Develop a Patient-Centered Research Agenda. Lessons Learned from the Research Action for Health Network (REACHnet)

    topic

    endocrine diseasesnutrition and nutritional disorders

    location

    USA

    research focus

    obesity and diabetes

    method

    focus groupmeetingsurvey

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorspatients
  • Identifying Research Priorities for Digital Technology in Mental Health Care: Results of the James Lind Alliance Priority Setting Partnership

    topic

    mental health

    location

    United Kingdom

    research focus

    digital technology in mental health care

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Community Priorities for Research on Neurodevelopmental Disorders

    topic

    neurodevelopmental disorders

    location

    Canada

    research focus

    neurodevelopmental disorders

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorspatients
  • The Top Research Questions Asked by People with Lived Depression Experience in Alberta: A Survey

    topic

    mood disorders

    location

    Canada

    research focus

    depression

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorspatients
  • Female Genital Mutilation in the UK – where are We, where Do We Go Next? Involving Communities in Setting the Research Agenda

    topic

    genitourinary system

    location

    United Kingdom

    research focus

    female genital mutilation

    method

    focus groupworkshop

    involved stakeholders

    academics/researchershealthcare providerspatients
  • Establishing Research Priorities in Prevention and Control of Vector-Borne Diseases in Urban Areas: A Collaborative Process

    topic

    infectious and parasitic diseases

    location

    international

    research focus

    vector-borne disease

    method

    meeting

    involved stakeholders

    academics/researchersagenciespolicymakers
  • Determining the Education and Research Priorities in Pediatric Trauma Nursing: A Delphi Study

    topic

    nursing and carepediatrics

    location

    USA

    research focus

    pediatric trauma nursing

    method

    Delphi

    involved stakeholders

    nurses
  • Research Priorities for Specialized Nursing Practice in the United Arab Emirates

    topic

    nursing and care

    location

    United Arab Emirates

    research focus

    specialized nursing practice

    method

    Delphi

    involved stakeholders

    nurses
  • Consensus Research Priorities for Facial Palsy: A Delphi Survey of Patients, Carers, Clinicians and Researchers

    topic

    nervous system

    location

    United Kingdom

    research focus

    facial palsy

    method

    Delphi

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorspatients
  • Setting Global Research Priorities for Child Protection in Humanitarian Action: Results from an Adapted CHNRI Exercise

    topic

    pediatrics

    location

    international

    research focus

    child protection in humanitarian action

    method

    CHNRI approach

    involved stakeholders

    academics/researchersagenciesfundersnon-governmental organizations
  • Setting a Patient-Centered Research Agenda for Cerebral Palsy: A Participatory Action Research Initiative

    topic

    nervous system

    location

    USA

    research focus

    cerebral palsy

    method

    surveywebinarworkshop

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorspatients
  • A Global Research Agenda for Adolescents Living with HIV

    topic

    infectious and parasitic diseases

    location

    international

    research focus

    HIV

    method

    CHNRI approach

    involved stakeholders

    academics/researchershealthcare providers
  • Setting Global Research Priorities in Pediatric and Adolescent HIV Using the Child Health and Nutrition Research Initiative (CHNRI) Methodology

    topic

    infectious and parasitic diseasespediatrics

    location

    international

    research focus

    pediatric and adolescent HIV

    method

    CHNRI approach

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorspatients
  • Patient and Public Involvement in Identifying Dementia Research Priorities

    topic

    neurocognitive disorders

    location

    Canada

    research focus

    dementia

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Priorities for Caregiver Research in Cancer Care: An International Delphi Survey of Caregivers, Clinicians, Managers, and Researchers

    topic

    cancernursing and care

    location

    international

    research focus

    cancer care

    method

    Delphi

    involved stakeholders

    academics/researchersfamily/friends/carersdoctors
  • Researching What Matters to Improve Chronic Pain Care in Canada: A Priority-Setting Partnership Process to Support Patient-Oriented Research

    topic

    general symptoms, signs and clinical findings

    location

    Canada

    research focus

    chronic pain

    method

    JLA method

    involved stakeholders

    academics/researchersdoctorspatientspolicymakers
  • Cardiovascular Nursing Science Priorities a Statement from the American Heart Association Council on Cardiovascular and Stroke Nursing

    topic

    circulatory systemnursing and care

    location

    USA

    research focus

    cardiovascular nursing

    method

    group discussionsurvey

    involved stakeholders

    nurses
  • Delphi Analysis of Science Gaps in the 2015 American Heart Association Cardiac Arrest Guidelines

    topic

    circulatory system

    location

    USA

    research focus

    cardiac arrest

    method

    Delphi

    involved stakeholders

    doctors
  • Prioritised Research Areas within the Fields of Prevention, Diagnosis and Treatment of Maternal Birth Injuries

    topic

    pregnancy and childbirth

    location

    Sweden

    research focus

    prevention, diagnosis and treatment of maternal birth injuries

    method

    surveyworkshop

    involved stakeholders

    allied healthcare professionalsnursespatients
  • Reaching a Consensus on Research Priorities for Supporting Women with Autoimmune Rheumatic Diseases During Pre-Conception, Pregnancy and Early Parenting: A Nominal Group Technique Exercise with Lay and Professional Stakeholders

    topic

    musculoskeletal system and connective tissue

    location

    United Kingdom

    research focus

    women with autoimmune rheumatic diseases

    method

    workshop

    involved stakeholders

    academics/researchersagenciesallied healthcare professionalsdoctorsnurseslearnerspatients
  • Setting a Nigeria National Malaria Operational Research Agenda: The Process

    topic

    infectious and parasitic diseases

    location

    Nigeria

    research focus

    Malaria

    method

    interviewsurveyworkshop

    involved stakeholders

    academics/researchersnon-governmental organizationspolicymakers
  • Brief Report: A Survey of Autism Research Priorities Across a Diverse Community of Stakeholders

    topic

    neurodevelopmental disorders

    location

    CanadaUSA

    research focus

    autism

    method

    survey

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorspatients
  • Priority Issues for Pressure Injury Research: An Australian Consensus Study

    topic

    injuries

    location

    Australia

    research focus

    pressure injuries

    method

    survey

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnurses
  • Defining Future Research Priorities in Donation and Organ and Stem Cell Transplantation with Patients, Families, Caregivers, Healthcare Providers and Researchers Within the Canadian National Transplant Research Program

    topic

    organs and tissues

    location

    Canada

    research focus

    donation and organ and stem cell transplantation

    method

    surveyworkshop

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Rare Inherited Anaemias Priority Setting Partnership

    topic

    blood

    location

    United Kingdom

    research focus

    rare inherited anaemias

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Addressing the Evidence Gap in Stroke Rehabilitation for Patient Complexity: A Preliminary Research Agenda

    topic

    nervous system

    location

    Canada

    research focus

    stroke rehabilitation

    method

    workshop

    involved stakeholders

    academics/researchersdoctorspolicymakers
  • Climate Research Priorities for Policy-Makers, Practitioners, and Scientists in Georgia, USA

    topic

    environment

    location

    USA

    research focus

    climate

    method

    surveyworkshop

    involved stakeholders

    academics/researchersagenciesnon-governmental organizations
  • Research Priorities in Health Communication and Participation: International Survey of Consumers and Other Stakeholders

    topic

    health communication

    location

    international

    research focus

    health communication and participation

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersfundersallied healthcare professionalsdoctorsnursespatientspolicymakers
  • Patient-Centered Prioritization of Bladder Cancer Research

    topic

    cancer

    location

    USA

    research focus

    bladder cancer

    method

    Delphimeeting

    involved stakeholders

    family/friends/carersdoctorsnursespatients
  • Research Priorities of VA Nurses

    topic

    nursing and care

    location

    USA

    research focus

    VA nursing

    method

    Delphi

    involved stakeholders

    nurses
  • Consensus-Based Clinical Research Priorities for Emergency Nursing in Australia

    topic

    emergency medicinenursing and care

    location

    Australia

    research focus

    emergency nursing

    method

    Delphi

    involved stakeholders

    nurses
  • Priorities for Protected Area Research

    topic

    environment

    location

    international

    research focus

    protected areas

    method

    survey

    involved stakeholders

    academics/researchersenvironmental practitionersfundersnon-governmental organizations
  • Shared Research Priorities for Pessary Use in Women with Prolapse: Results from a James Lind Alliance Priority Setting Partnership

    topic

    genitourinary system

    location

    United Kingdom

    research focus

    pessary use in women with prolapse

    method

    JLA method

    involved stakeholders

    allied healthcare professionalsdoctorspatients
  • A Consensus Exercise Identifying Priorities for Research into Clinical Effectiveness among Children’s Orthopaedic Surgeons in the United Kingdom

    topic

    surgery

    location

    United Kingdom

    research focus

    children’s orthopedic surgery

    method

    Delphi

    involved stakeholders

    doctors
  • Identifying Research Priorities Around Psycho-Cognitive and Social Factors for Recovery from Hip Fractures: An International Decision-Making Process

    topic

    injuries

    location

    international

    research focus

    psycho-cognitive and social factors for recovery from hip fractures

    method

    surveyworkshop

    involved stakeholders

    academics/researchersdoctors
  • Patient Perspectives on Priorities for Emergency Medicine Research: The PERSPEX Study

    topic

    emergency medicine

    location

    Australia

    research focus

    emergency medicine

    method

    survey

    involved stakeholders

    patients
  • The Top 10 Research Priorities in Cystic Fibrosis Developed by a Partnership Between People with CF and Healthcare Providers

    topic

    respiratory system

    location

    international

    research focus

    cystic fibrosis

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Project Transform: Engaging Patient Advocates to Share their Perspectives on Improving Research, Treatment and Policy

    topic

    cancer

    location

    USA

    research focus

    lung cancer

    method

    interviewmeeting

    involved stakeholders

    patients
  • Identifying Priority Policy Issues and Health System Research Questions Associated with Recovery Outcomes for Burns Survivors in India: A Qualitative Inquiry

    topic

    injuries

    location

    India

    research focus

    burn survival

    method

    focus groupinterview

    involved stakeholders

    family/friends/carershealthcare providersnon-governmental organizationspatients
  • Identifying Trial Recruitment Uncertainties using a James Lind Alliance Priority Setting Partnership – The PRioRiTy (Prioritising Recruitment in Randomised Trials) Study

    topic

    health research

    location

    United Kingdom

    research focus

    recruitment in randomized trials

    method

    JLA method

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorspatients
  • Coeliac UK’s Top 10 Research Priorities

    topic

    digestive system

    location

    United Kingdom

    research focus

    coeliac disease

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Top 10 Research Priorities in Head and Neck Cancer: Results of an Alberta Priority Setting Partnership of Patients, Caregivers, Family Members, and Clinicians

    topic

    cancer

    location

    Canada

    research focus

    head and neck cancer

    method

    JLA method

    involved stakeholders

    academics/researchersfamily/friends/carersdoctorsnursespatients
  • Consensus Research Priorities for Paediatric Status Epilepticus: A Delphi Study of Health Consumers, Researchers and Clinicians

    topic

    nervous systempediatrics

    location

    AustraliaNew Zealand

    research focus

    pediatric status epilepticus

    method

    Delphi

    involved stakeholders

    family/friends/carersdoctorspatients
  • Identifying Primary Care Patient Safety Research Priorities in the UK: A James Lind Alliance Priority Setting Partnership

    topic

    nursing and carehealth and patient safety

    location

    United Kingdom

    research focus

    primary care patient safety

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Setting the Top 10 Research Priorities to Improve the Health of People with Type 2 Diabetes: A Diabetes UK – James Lind Alliance Priority Setting Partnership

    topic

    endocrine diseases

    location

    United Kingdom

    research focus

    diabetes type 2

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Patient Engagement in Type 2 Diabetes Mellitus Research: What Patients Want

    topic

    endocrine diseases

    location

    USA

    research focus

    diabetes type 2

    method

    group discussion

    involved stakeholders

    patients
  • Research Priority-Setting: Reproductive Health in the Occupied Palestinian Territory

    topic

    sexual healthpregnancy and childbirth

    location

    Palestine

    research focus

    reproductive health

    method

    CHNRI approach

    involved stakeholders

    academics/researchersdoctorsnon-governmental organizationspolicymakers
  • Identifying Research Priorities for Patient Safety in Mental Health: An International Expert Delphi Study

    topic

    mental healthhealth and patient safety

    location

    SingaporeAustraliaNew ZealandDenmarkFinlandGermanyIrelandNetherlandsSwedenSwitzerlandUnited KingdomUSA

    research focus

    patient safety in mental health

    method

    Delphiinterview

    involved stakeholders

    academics/researcherspatients
  • Engaging Patients in Setting a Patient-Centered Outcomes Research Agenda in Hematopoietic Cell Transplantation

    topic

    organs and tissues

    location

    USA

    research focus

    hematopoietic cell transplantation

    method

    meetingwebinar

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalspatientspolicymakers
  • Which Research Questions are Important for the Bereaved Families of Palliative Care Cancer Patients? A Nationwide Survey

    topic

    nursing and care

    location

    Japan

    research focus

    palliative care

    method

    survey

    involved stakeholders

    family/friends/carers
  • Developing Research Priorities for Nurses Working in the Gynaecology Setting in Western Australia

    topic

    nursing and carepregnancy and childbirth

    location

    Australia

    research focus

    gynecological nursing

    method

    Delphi

    involved stakeholders

    nurses
  • Establishing and Prioritizing Research Questions for the Prevention, Diagnosis and Treatment of Hair Loss (Excluding Alopecia Areata): The Hair Loss Priority Setting Partnership

    topic

    skin

    location

    United Kingdom

    research focus

    hair loss

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorspatients
  • Research Priorities for Healthcare Chaplaincy: Views of U.S. Chaplains

    topic

    nursing and care

    location

    USA

    research focus

    healthcare chaplaincy

    method

    surveyworkshop

    involved stakeholders

    spiritual service providers
  • Research Priorities for Conservation and Natural Resource Management in Oceania’s Small Island Developing States

    topic

    environment

    location

    Australia

    research focus

    conservation and natural resource management

    method

    survey

    involved stakeholders

    academics/researchersnon-governmental organizationspolicymakers
  • Establishing Research Priorities Relating to the Long-Term Impact of TIA and Minor Stroke Through Stakeholder-Centred Consensus

    topic

    nervous system

    location

    United Kingdom

    research focus

    long-term impact of transient ischemic attack and minor stroke

    method

    surveyworkshop

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnursespatients
  • Research Priorities in Palliative Care

    topic

    nursing and care

    location

    United Kingdom

    research focus

    palliative care

    method

    Delphi

    involved stakeholders

    allied healthcare professionalsdoctorsnursesspiritual service providers
  • Patients‘ and Caregivers‘ Needs, Experiences, Preferences and Research Priorities in Spiritual Care: A Focus Group Study Across Nine Countries

    topic

    nursing and care

    location

    KenyaSouth AfricaSouth KoreaBelgiumFinlandPolandUnited KingdomCanadaUSA

    research focus

    spiritual care

    method

    focus group

    involved stakeholders

    family/friends/carerspatients
  • Priorities for Advancing Research on Youth with Autism Spectrum Disorder and Co-Occurring Anxiety

    topic

    neurodevelopmental disorders

    location

    USA

    research focus

    autism spectrum disorder and co-occurring anxiety

    method

    meetingsurvey

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctors
  • PREDICT Prioritization Study: Establishing the Research Priorities of Paediatric Emergency Medicine Physicians in Australia and New Zealand

    topic

    emergency medicinepediatrics

    location

    AustraliaNew Zealand

    research focus

    pediatric emergency medicine

    method

    Delphi

    involved stakeholders

    doctors
  • Creating a Research Agenda and Setting Research Priorities for Clinical Nurse Specialists

    topic

    nursing and care

    location

    USA

    research focus

    clinical nursing

    method

    ENHR approach

    involved stakeholders

    nurses
  • Top 10 Research Priorities Relating to Aphasia Following Stroke

    topic

    nervous systemneurocognitive disorders

    location

    United Kingdom

    research focus

    aphasia following stroke

    method

    meetingsurvey

    involved stakeholders

    family/friends/carersallied healthcare professionalspatients
  • Research Priorities of the Canadian Chiropractic Profession: A Consensus Study using a Modified Delphi Technique

    topic

    complementary medicine

    location

    Canada

    research focus

    chiropractic profession

    method

    Delphiworkshop

    involved stakeholders

    academics/researcherseducatorsallied healthcare professionals
  • Rapid Research and Implementation Priority Setting for Wound Care Uncertainties

    topic

    nursing and care

    location

    United Kingdom

    research focus

    wound care

    method

    surveyworkshop

    involved stakeholders

    allied healthcare professionalsnurses
  • Moving Forward Through Consensus: A Modified Delphi Approach to Determine the Top Research Priorities in Orthopaedic Oncology

    topic

    cancer

    location

    international

    research focus

    orthopedic oncology

    method

    Delphi

    involved stakeholders

    academics/researchersfundersdoctorspatients
  • Scoliosis Priority Setting Partnership. Final Report

    topic

    musculoskeletal system and connective tissue

    location

    United Kingdom

    research focus

    scoliosis

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • A Modified Delphi Process to Identify Clinical and Research Priorities in Patient and Family Centred Critical Care

    topic

    nursing and care

    location

    Canada

    research focus

    patient and family-centered critical care

    method

    Delphi

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatientsspiritual service providers
  • The Kidney Cancer Research Priority-Setting Partnership: Identifying the Top 10 Research Priorities as Defined by Patients, Caregivers, and Expert Clinicians

    topic

    cancer

    location

    Canada

    research focus

    kidney cancer

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Research Priority Setting in Barrett’s Oesophagus and Gastro-Oesophageal Reflux Disease

    topic

    digestive system

    location

    United Kingdom

    research focus

    Barrett’s oesophagus and gastro-oesophageal reflux disease

    method

    JLA method

    involved stakeholders

    doctorsnursespatients
  • Transform Health Arkansas: A Transgender-Led Partnership Engaging Transgender/Non-Binary Arkansans in Defining Health Research Priorities

    topic

    public health

    location

    USA

    research focus

    public health

    method

    meetingsurvey

    involved stakeholders

    patients
  • A Paradigm Change to Inform Fibromyalgia Research Priorities by Engaging Patients and Health Care Professionals

    topic

    general symptoms, signs and clinical findings

    location

    Canada

    research focus

    fibromyalgia

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorspatients
  • Identifying Research Priorities for Public Health Research to Address Health Inequalities: Use of Delphi-Like Survey Methods

    topic

    public health

    location

    United Kingdom

    research focus

    public health

    method

    Delphisurvey

    involved stakeholders

    academics/researchersallied healthcare professionalsdoctorsnurses
  • Research Priorities for the Intersection of Alcohol and HIV/AIDS in Low and Middle Income Countries: A Priority Setting Exercise

    topic

    infectious and parasitic diseasessubstance use and addictive behaviors

    location

    international

    research focus

    alcohol and HIV/AIDS

    method

    CHNRI approach

    involved stakeholders

    academics/researchersnon-governmental organizations
  • Priority Setting for Mental Health Research in Chile

    topic

    mental health

    location

    Chile

    research focus

    mental health

    method

    consultationfocus groupinterviewsurvey

    involved stakeholders

    academics/researchersdoctorsnursespatients
  • Research Priority Setting for Integrated Early Child Development and Violence Prevention (ECD+) in Low and Middle Income Countries: An Expert Opinion Exercise

    topic

    pediatricspublic health

    location

    international

    research focus

    integrated early child development and violence prevention

    method

    CHNRI approach

    involved stakeholders

    academics/researchershealthcare providersnon-governmental organizationspolicymakers
  • Using a Co-Production Prioritization Exercise Involving South Asian Children, Young People and their Families to Identify Health Priorities Requiring Further Research and Public Awareness

    topic

    pediatrics

    location

    United Kingdom

    research focus

    child health

    method

    focus groupsurvey

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnurses
  • Hypertension Management Research Priorities from Patients, Caregivers, and Healthcare Providers: A Report from the Hypertension Canada Priority Setting Partnership Group

    topic

    circulatory system

    location

    Canada

    research focus

    hypertension management

    method

    JLA method

    involved stakeholders

    family/friends/carershealthcare providerspatients
  • Updating the School Counseling Research Agenda: A Delphi Study

    topic

    social work

    location

    USA

    research focus

    school counseling

    method

    Delphi

    involved stakeholders

    social workers
  • Stakeholder Research Priorities for Smoking Cessation Interventions Within Lung Cancer Screening Programs

    topic

    cancer

    location

    USA

    research focus

    lung cancer

    method

    meetingsurvey

    involved stakeholders

    academics/researchersfundersallied healthcare professionalsdoctorsnursespatients
  • Identifying Research Priorities for Effective Retention Strategies in Clinical Trials

    topic

    health research

    location

    United Kingdom

    research focus

    retention strategies in clinical trials

    method

    Delphisurvey

    involved stakeholders

    academics/researchersfundersallied healthcare professionalspatients
  • Priorities for Research in Miscarriage: A Priority Setting Partnership Between People Affected by Miscarriage and Professionals Following the James Lind Alliance Methodology

    topic

    pregnancy and childbirth

    location

    United Kingdom

    research focus

    miscarriage

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • What are the Dietary Treatment Research Priorities for Inflammatory Bowel Disease? A Short Report Based on a Priority Setting Partnership with the James Lind Alliance

    topic

    digestive systemnutrition and nutritional disorders

    location

    United Kingdom

    research focus

    dietary treatment for inflammatory bowel disease

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • A Stakeholder Engagement Approach for Identifying Future Research Directions in the Evaluation of Current and Emerging Applications of GMOs

    topic

    agriculture

    location

    international

    research focus

    genetically modified organisms

    method

    surveyworkshop

    involved stakeholders

    academics/researchersagenciesnon-governmental organizations
  • Research Priorities About Stoma-Related Quality of Life from the Perspective of People with a Stoma: A Pilot Survey

    topic

    nursing and care

    location

    United Kingdom

    research focus

    stoma

    method

    survey

    involved stakeholders

    patients
  • What Do Young People with Rheumatic Disease Believe to be Important to Research About their Condition? A UK-Wide Study

    topic

    musculoskeletal system and connective tissue

    location

    United Kingdom

    research focus

    rheumatic conditions

    method

    focus group

    involved stakeholders

    patients
  • A Suicide Research Agenda for People from Immigrant and Refugee Backgrounds

    topic

    public health

    location

    Australia

    research focus

    suicide of people from immigrant and refugee backgrounds

    method

    Delphi

    involved stakeholders

    academics/researchersfamily/friends/carersallied healthcare professionalspatientspolicymakers
  • An Emergency Medicine Research Priority Setting Partnership to Establish the Top 10 Research Priorities in Emergency Medicine

    topic

    emergency medicine

    location

    United Kingdom

    research focus

    emergency medicine

    method

    JLA method

    involved stakeholders

    family/friends/carersdoctorsnursespatients
  • Priorities for Methodological Research on Patient and Public Involvement in Clinical Trials: A Modified Delphi Process

    topic

    health research

    location

    United Kingdom

    research focus

    clinical trials

    method

    Delphi

    involved stakeholders

    academics/researchersfundershealthcare providerspatients
  • Prison Health Service Directors‘ Views on Research Priorities and Organizational Issues in Conducting Research in Prison: Outcomes of a National Deliberative Roundtable

    topic

    public health

    location

    Australia

    research focus

    prison health

    method

    workshop

    involved stakeholders

    allied healthcare professionals
  • Research Priorities for Studies Linking Intake of Low Calorie Sweeteners and Potentially Related Health Outcomes

    topic

    nutrition and nutritional disorders

    location

    USA

    research focus

    low calorie sweeteners

    method

    interviewsurveymeetingwebinar

    involved stakeholders

    academics/researchersfundershealthcare providerspatientspolicymakers
  • Setting Research Priorities for Maternal, Newborn, Child Health and Nutrition in India by Engaging Experts from 256 Indigenous Institutions Contributing over 4000 Research Ideas: A CHNRI Exercise by ICMR and INCLEN

    topic

    nutrition and nutritional disorderspediatricspregnancy and childbirth

    location

    India

    research focus

    maternal, newborn, child health and nutrition

    method

    CHNRI approach

    involved stakeholders

    academics/researchersfundersallied healthcare professionalsdoctorsnursespolicymakers
  • Top Ten Endometriosis Research Priorities in the UK and Ireland

    topic

    genitourinary system

    location

    IrelandUnited Kingdom

    research focus

    endometriosis

    method

    JLA method

    involved stakeholders

    academics/researchershealthcare providerspatients
  • Survived so What? Identifying Priorities for Research with Children and Families Post-Paediatric Intensive Care Unit

    topic

    nursing and carepediatrics

    location

    United Kingdom

    research focus

    pediatric Intensive Care Unit survivors

    method

    meeting

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Identifying Priority Areas for Research into the Diagnosis, Treatment and Prevention of Cellulitis (Erysipelas): Results of a James Lind Alliance Priority Setting Partnership

    topic

    infectious and parasitic diseases

    location

    United Kingdom

    research focus

    cellulitis

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatients
  • Determining the Research Priorities for Patients with Chronic Kidney Disease not on Dialysis

    topic

    genitourinary system

    location

    Canada

    research focus

    chronic kidney disease

    method

    JLA method

    involved stakeholders

    family/friends/carersallied healthcare professionalsdoctorsnursespatientspolicymakers
  • The Research Priorities of People with Visual Impairments in the Netherlands

    topic

    visual system

    location

    Netherlands

    research focus

    visual impairments

    method

    focus groupinterviewmeetingsurvey

    involved stakeholders

    academics/researchersfunderspatients
  • A Delphi Study to Determine Rehabilitation Research Priorities for Older Adults with Cancer

    topic