Setting a Research Agenda for Vascular Ehlers-Danlos Syndrome using a Patient and Stakeholder Engagement Model

For which topic were research priorities identified?

vascular Ehlers-Danlos syndrome

In which location was the research priority setting conducted?

North America - USA

Why was it conducted at all?

What was the objective?

What was the outcome?

How long did the research prioritization take?

Which methods were used to identify research priorities?

Delphi

How were the priorities for research identified exactly?

Which stakeholders took part?

How were stakeholders recruited?

Were stakeholders actively involved or did they just participate?