Coeliac UK's Top 10 Research Priorities

JLA PSP final report (2018) full text summary PDF

For which topic were research priorities identified?

coeliac disease

In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

No rationale provided.

What was the objective?

to agree on a top ten list of research priorities

What was the outcome?

a ranking list of 10 research questions

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

JLA method

How were the priorities for research identified exactly?

Step 1: setting up PSP: steering group established, stakeholders and partner organizations identified. Step 2: gathering research questions: survey for participants to submit their questions about coeliac disease which may be answered by further research. Step 3: data processing: categorization of submitted questions, check against evidence. Step 4: interim ranking: survey to rank research questions. Step 5: final prioritization: workshop: discussing and agreeing on top ten list of priorities

Which stakeholders took part?

People with coeliac disease, their carers and healthcare professionals.

How were stakeholders recruited?

No information provided.

Were stakeholders actively involved or did they just participate?

Stakeholders not only participated but were also actively involved in the research prioritization process: They were part of a steering group.