Examining Management and Research Priorities in Patients with Polymyalgia Rheumatica: A Primary Care Questionnaire Survey

For which topic were research priorities identified?

polymyalgia rheumatica

In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

Polymyalgia rheumatica (PMR) is a common inflammatory disorder that is usually managed with oral glucocorticoids, which although effective can cause significant adverse events. Support group survey data suggests length of glucocorticoid treatment and managing side effects are key priority areas of management for patients. Recognising that not all patients will access patient support organisations, our objective was to identify priorities for PMR management and research among primary care PMR patients.

What was the objective?

to identify priorities for polymyalgia rheumatica (PMR) management and research among primary care PMR patients

What was the outcome?

a ranking list of 18 research topics

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

survey

How were the priorities for research identified exactly?

Step 1: survey including questions regarding patient priorities for PMR management from predefined list of 10 items identified from telephone helpline and suggestions for future research

Which stakeholders took part?

All adults aged ≥ 50 years registered with 150 English general practices who had a first read code for PMR in their medical records in the preceding 3 years. 550 participants.

How were stakeholders recruited?

Adults (age ≥ 50 years) with a first read-coded diagnosis of PMR between January 1, 2010 and January 1, 2013 were identified via an electronic search of primary care records from 150 participating general practices across England.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.