Rare Disease Research Partnership (RAinDRoP): A Collaborative Approach to Identify Research Priorities for Rare Diseases in Ireland

For which topic were research priorities identified?

rare diseases

In which location was the research priority setting conducted?

Europe - Ireland

Why was it conducted at all?

What was the objective?

What was the outcome?

How long did the research prioritization take?

Which methods were used to identify research priorities?

survey; workshop

How were the priorities for research identified exactly?

Which stakeholders took part?

How were stakeholders recruited?

Were stakeholders actively involved or did they just participate?