Cystic Fibrosis Research in Allied Health and Nursing Professions

Bradley et al. (2012) full text summary PDF

For which topic were research priorities identified?

cystic fibrosis

In which location was the research priority setting conducted?

international

Why was it conducted at all?

Allied Health Professionals (AHPs) and nurses provide interventions to patients that impact the physical, psychological, social and emotional impact of CF. These interventions contribute greatly to the overall management of patients with CF. However, recent CF guidelines have highlighted the need to improve the quality of AHP and nursing research and thus, a consensus conference was convened to identify both the priority areas for future AHP and nursing research and to identify research skills which can be improved.

What was the objective?

to identify high priority research areas and themes

What was the outcome?

a ranking list of 10 research topics

How long did the research prioritization take?

1 day, November 2009

Which methods were used to identify research priorities?

Delphi

How were the priorities for research identified exactly?

Step 1: Delphi round 1: to identify priority research areas and themes for AHPs and nurses that could be addressed in clinical research and could potentially attract funding, 89 research areas and 23 themes proposed. Step 2: Delphi round 2: participants were asked to rate each area and theme. Step 3: participants were asked to re-rate based on overall group responses and own rating from round 2, participants were asked to rank top 10 themes. Step 4: discussion of results along with literature reviews to confirm these gaps

Which stakeholders took part?

32 allied health professionals and nurses and 6 patients/carers

How were stakeholders recruited?

Participants were recruited via a meeting of the "Allied Health and Nursing Professions Working Group".

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.