Hyperhidrosis Priority Setting Partnership

JLA PSP final report (2019) full text summary PDF

For which topic were research priorities identified?

hyperhidrosis

In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

Despite it being a common condition hyperhidrosis is relatively under- researched compared with other skin conditions that affect a similar number of people. People often report difficulties in accessing treatments via the NHS, and often the treatments that there are don't work for a lot of people.

What was the objective?

to identify the top ten research priorities for the treatment and management of hyperhidrosis

What was the outcome?

a ranking list of 10 research questions

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

JLA method

How were the priorities for research identified exactly?

Step 1: setting up PSP: steering group established, stakeholders and partner organizations identified. Step 2: collecting uncertainties: survey asking people with hyperhidrosis, their family and friends, and healthcare professionals for the questions they would like research to answer about management and treatment of hyperhidrosis, additional literature screened, 592 questions submitted. Step 3: data processing: out-of-scope removed, duplicates combined, check against evidence, 45 indicative questions formulated. Step 4: interim prioritization: via survey, participants were asked to choose their top ten from longlist of 45 questions. Step 5: final prioritization: workshop: small group discussions and rankings, plenary session

Which stakeholders took part?

Patients, carers, clinicians.

How were stakeholders recruited?

No information provided.

Were stakeholders actively involved or did they just participate?

Stakeholders not only participated but were also actively involved in the research prioritization process: They were part of a steering group. The steering group consisted of people with hyperhidrosis, healthcare professionals and academics. The members oversaw and organized the activities of the PSP.