Does Cancer Research Focus on Areas of Importance to Patients?
For which topic were research priorities identified?
In which location was the research priority setting conducted?
Europe - United Kingdom
Why was it conducted at all?
Cancer research proposals and strategies are commonly developed by clinicians or scientists and grant applications are reviewed by scientific advisory boards. However, do patients agree with researchers on which areas of research are important? Although patient involvement in aspects of clinical trials (e.g. the review of trial information) is increasing , surprisingly little is known about which areas of research patients feel are important.
What was the objective?
to investigate patients' views on priorities for cancer research
What was the outcome?
a ranking list of 12 research topics
How long did the research prioritization take?
April 2015 - May 2015
Which methods were used to identify research priorities?
How were the priorities for research identified exactly?
Step 1: survey with list of 12 research topics, patients asked to rank topics in order of perceived priority.
Which stakeholders took part?
Patients. 780 participants.
How were stakeholders recruited?
Questionnaires were available from reception/stands at a number of locations throughout the hospital and a member of the research team distributed the questionnaire for 2 weeks at each site. In addition, 315 patient members of the RM Foundation Trust were posted or emailed a copy of the questionnaire.
Were stakeholders actively involved or did they just participate?
Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.