Patient Priorities in Herpes Simplex Keratitis

For which topic were research priorities identified?

herpes simplex keratitis

In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

Herpes simplex keratitis (HSK) is a sight threatening disease and a leading cause of infectious corneal blindness. Involving patients in setting the research agenda maximises patient benefit and minimises research waste. With no published patient involvement exercises, patients' priorities in HSK are unclear.

What was the objective?

to recognize patients as stakeholders for research and clinical care in herpes simplex keratitis, to provide an opportunity for patients to steer the direction of future research and to understand the patient's perspective on living with herpes simplex keratitis

What was the outcome?

a list of 3 research areas

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

interview; survey

How were the priorities for research identified exactly?

Step 1: literature search identifying nine research areas. Step 2: survey and interviews: participants were asked to rank these nine areas in order of importance and to share their thoughts on each domain

Which stakeholders took part?

Patients. 56 participants.

How were stakeholders recruited?

Patients were recruited sequentially during a 6-month time frame. During consultation, all patients with an established diagnosis of HSK were invited to participate in the survey.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.