UK Lyme Disease Priority Setting Partnership. Deciding the Final Priorities

JLA PSP final report (2012) full text summary PDF

For which topic were research priorities identified?

lyme disease

In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

No rationale provided.

What was the objective?

to identify the top ten research priorities for lyme disease

What was the outcome?

a ranking list of 10 research questions

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

JLA method

How were the priorities for research identified exactly?

Step 1: setting up PSP: steering group established, stakeholders and partner organizations identified. Step 2: collecting uncertainties: 967 questions submitted. Step 3: data processing: duplicates removed, 81 indicative questions formulated, check against evidence, resulting in 69 questions, further consolidating into set of 39 questions. Step 4: interim ranking: survey asking participants to vote for their own top 10, top 26 moving forward to workshop. Step 5: final prioritization: workshop: small group discussions and small group rankings, plenary discussion

Which stakeholders took part?

Patients, clinicians. Survey: 34% clinicians. Interim ranking: 103 participants: 24% clinicians. Workshop: 5 patients and 4 doctors.

How were stakeholders recruited?

No information provided.

Were stakeholders actively involved or did they just participate?

Stakeholders not only participated but were also actively involved in the research prioritization process: They were part of a steering group.