Research Priorities About Stoma-Related Quality of Life from the Perspective of People with a Stoma: A Pilot Survey

For which topic were research priorities identified?


In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

There is a recognized need to include patients in setting research priorities. Research priorities identified by people with a stoma are rarely elicited.

What was the objective?

to improve the quality of life of people with a stoma through use of evidence-based practice based on research priorities set by patients

What was the outcome?

a ranking list of 9 research topics

How long did the research prioritization take?

3 months

Which methods were used to identify research priorities?


How were the priorities for research identified exactly?

Step 1: literature review: 9 stoma-related quality of life topics derived from literature. Step 2: survey: topics listed, participants were asked to rank them in order of research priority

Which stakeholders took part?

Stoma patients: people 16 years of age and over who currently have or have had a stoma for treatment for any medical condition. 225 participants.

How were stakeholders recruited?

Several relevant UK charities (Colostomy Association, Ileostomy Association, Urostomy Association and Bowel and Cancer Research) included a link on their website and on social media (eg. Facebook) to the study's online questionnaire.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.