Clinical Priorities, Barriers and Solutions in End-of-Life Cancer Care Research Across Europe. Report from a Workshop

Sigurdardottir et al. (2010) full text summary PDF

For which topic were research priorities identified?

end-of-life cancer care

In which location was the research priority setting conducted?

Europe

Why was it conducted at all?

PRISMA is a coordinating action project in the European Commission's 7th Framework Programme. This 3-year pro ject of integrated work packages (WP) aims to support and drive forward EOL cancer care research across Europe. The work packages will undertake actions to identify cultural dif ferences in EOL care, establish a collaborative research agen da informed by public and clinical priorities and draw together best practice and resources for quality assurance. In spring 2009, a pan-European survey of EOL cancer care research in Europe was conducted as part of PRISMA Work Package 3.5 The aim of the survey was to map research topics and activities, barriers and priorities.

What was the objective?

to identify clinical priorities for end-of-life care research in Europe, propose a future research agenda, and identify barriers to end-of-life care research as well as possibilities and solutions to improve the research

What was the outcome?

a list of 4 research areas

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

survey; workshop

How were the priorities for research identified exactly?

Step 1: survey: participants were asked to indicate their level of agreement for each topic, participants also asked to identify most relevant research questions within each of the highest ranked topics, participants also asked to rate importance of several aspects related to highest ranked research barriers from survey. Step 2: workshop: plenary session to discuss survey results

Which stakeholders took part?

Physicians, researchers. Survey: 127 participants. Workshop: 30 participants.

How were stakeholders recruited?

The participants were selected from the group of responders to the survey (127 responders from 36 countries), based on the following criteria: representatives (one per country) should be actively engaged in EOL care or palliative care, and preferably also in research, they should be well informed about the situation for EOL care research in their respective countries and be involved in national bodies, and have sufficient command of spoken and written English to participate in a workshop conducted in English.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.