Research Priorities for Health of People with Disabilities: An Expert Opinion Exercise

Tomlinson et al. (2009) full text summary PDF

For which topic were research priorities identified?

health of people with disabilities

In which location was the research priority setting conducted?

international

Why was it conducted at all?

International evidence shows that people with disabilities have many unmet health and rehabilitation needs, face barriers in accessing mainstream health-care services, and consequently have poor health. Inadequate specific information is available about the prevalence and patterns of health conditions of people with disabilities, effective interventions, and policy-relevant research about what works to improve health and functioning of people with disabilities. In view of the urgency of the issues at stake and scarcity of resources, research contributing to improvement of health of people with disabilities needs to be prioritised.

What was the objective?

to identify the most important research questions that could contribute to those with disabilities enjoying the highest attainable standard of health

What was the outcome?

a ranking list of 15 research questions

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

CHNRI approach

How were the priorities for research identified exactly?

Step 1: collecting research questions, resulting in initial list of 348 proposed research questions. Step 2: data processing: data collation, resulting in 83 research questions. Step 3: defining criteria: criteria for scoring research questions were defined. Step 4: scoring of research questions: stakeholders were asked to score 83 research questions

Which stakeholders took part?

Academics and researchers, NGOs, clinical practitioners. Survey: 82 participants. Scoring: 50 participants.

How were stakeholders recruited?

Snowball sampling was used to approach a group of experts known for their work on disability and health, including activists with disabilities.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.