Needs, Priorities, and Recommendations for Engaging Underrepresented Populations in Clinical Research: A Community Perspective
For which topic were research priorities identified?
clinical research for underrepresented populations
In which location was the research priority setting conducted?
North America - USA
Why was it conducted at all?
Engaging underrepresented groups in outcomes research is a public health priority for reducing health and health care disparities; yet, engaging these groups is challenging. Failure to involve these underrepresented populations in research further exacerbates these disparities. This article presents the health and research priorities of diverse groups of underrepresented populations in biomedical research, their concerns for participating in research, and strategies to engage them in their healthcare and research studies.
What was the objective?
to use community engaged research principles to identify research priorities and concerns of underrepresented populations
What was the outcome?
a list of 4 research topics
How long did the research prioritization take?
No information provided.
Which methods were used to identify research priorities?
How were the priorities for research identified exactly?
Step 1: 11 focus groups with 7 to 13 community members each: participants were asked to discuss the questions: What are the most important health concerns for you and your family? What health concerns would you like to see being researched or addressed by the health systems?. Step 2: data processing: content analysis
Which stakeholders took part?
Underrepresented research populations: hard-to-reach community members were convened, including low socioeconomic status African American and Spanish/English-speaking individuals, Spanish speaking individuals from a faith-based organization, individuals from economically disadvantaged (i.e., uninsured, HUD housing) backgrounds, and individuals with hearing impairments. 117 participants.
How were stakeholders recruited?
A purposive sampling method was used to recruit participants. Each participant was screened for inclusion criteria (i.e., adults, targeted neighborhood resident or priority health issues, ethnicity, and ages 18 and over). All eligible participants resided in the targeted neighborhood except for deaf and hard of hearing participants, the Latino participants, and the African-American male participants. Recruitment for the deaf and hard of hearing group was conducted through Bridges, an organization that serves deaf and hard of hearing adults and children to ensure they reach their potential]. Recruitment strategies included lyers as well as scripted phone and e-mail correspondence to NRC networks (e.g., church and neighborhood associations) to identify potential participants. The Latino participants were recruited using a Spanish-translated lyer, which was distributed in high density areas.
Were stakeholders actively involved or did they just participate?
Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.