Research Priorities for Rehabilitation and Aging with HIV: A Framework from the Canada International HIV and Rehabilitation Research Collaborative (CIHRRC)

For which topic were research priorities identified?

rehabilitation and aging with HIV

In which location was the research priority setting conducted?

Australia - Australia; Europe - United Kingdom; North America - Canada; North America - USA

Why was it conducted at all?

People living with HIV are living longer, and can experience physical, mental and social health challenges associated with aging and multimorbidity. Rehabilitation is well positioned to address disability and maximize healthy aging. An international collaborative network, called the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC), works to guide this emerging fiel

What was the objective?

to identify emerging research priorities in HIV, aging and rehabilitation from the perspectives of people living with HIV, clinicians, researchers, representatives from community organizations and policy stakeholder

What was the outcome?

a list of 7 research areas

How long did the research prioritization take?

1 day

Which methods were used to identify research priorities?

workshop

How were the priorities for research identified exactly?

Step 1: workshop: starting with 11 presentations on research evidence and plenary session with small and large group discussions, research priorities collected using three strategies: prior to workshop participants were asked to answer questions: "In your opinion, what are 2 new and emerging issues in the field of HIV, aging and rehabilitation? In your opinion, what are 2-3 key research priorities in the area of HIV, aging and rehabilitation that are essential for moving the field forward?", during workshop participants were asked to take notes on research ideas on notepads, at the end of workshop participants were asked to answer the questions: What are the three most important take-home messages that you heard at the Forum? Are there topics or issues that were raised today that you would like to see covered in future Forums, workshops or webinars?. Step 2: data processing: content analysis to identify research priority areas, areas then organized into draft framework of research priorities

Which stakeholders took part?

People living with HIV, researchers, clinicians and representatives of community-based organization. 69 participants: researchers (22%, n=15), followed by educators (17%, n=12), service providers (13%, n=9), community members, people living with HIV and other chronic illnesses (6%, n=4), graduate students (13%, n=9), clinicians (6%, n=4), and other stakeholders including coordinators and program managers (23%, n=16).

How were stakeholders recruited?

The project team invited people living with HIV, clinicians, academics, representatives from community-based organizations, community members, and all members of the Canada-International HIV and Rehabilitation Research Collaborative (CIHRRC) with interest and expertise in aging, HIV and rehabilitation. The project team promoted the Forum through email and website communications to members of Realize, CIHRRC, the Ontario HIV Treatment Network (OHTN) and Canadian Association for HIV Research (CAHR).

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.