Research Priorities Associated with Family Caregivers in Palliative Care: International Perspectives

Hudson et al. (2011) full text summary PDF

For which topic were research priorities identified?

palliative care

In which location was the research priority setting conducted?

international

Why was it conducted at all?

Reviews of the literature have consistently highlighted significant gaps with regard to research associated with family caregivers within the context of palliative care. The International Palliative Care Family Carer Research Collaboration (IPCFRC) operates under the auspices of The European Association for Palliative Care, and aims to foster collaboration and advancement of family
caregiver research within the context of palliative care. The IPCFRC identified that one of its key objectives was to determine
the research priorities associated with this area of inquiry. Establishing research priorities was deemed important because even though health care professionals are obliged to support family caregivers, there is minimal evidence to guide practice.

What was the objective?

to determine a priority driven research agenda for this field of inquiry

What was the outcome?

a ranking list of 7 research areas

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

survey

How were the priorities for research identified exactly?

Step 1: literature review: possible research priority topics extracted from existing studies, in addition relevant topics extracted from systematic literature reviews. Step 2: survey: participants were asked: What do you consider to be the most important research topics in the area of family carers and palliative care? Please rate each of the following areas in terms of importance as an area of research.

Which stakeholders took part?

Participants with academic or research, clinical, policy or student occupation. 55 participants.

How were stakeholders recruited?

Members of The International Palliative Care Family Carer Research Collaboration were recruited.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.