Research Priorities for Rare Neurological Diseases: A Representative View of Patient Representatives and Healthcare Professionals from the European Reference Network for Rare Neurological Diseases

For which topic were research priorities identified?

rare neurological diseases

In which location was the research priority setting conducted?

Australia - Australia; Europe - Austria; Europe - Belgium; Europe - Bulgaria; Europe - Czech Republic; Europe - France; Europe - Germany; Europe - Hungary; Europe - Ireland; Europe - Italy; Europe - Lithuania; Europe - Malta; Europe - Netherlands; Europe - Norway; Europe - Poland; Europe - Slovenia; Europe - Spain; Europe - Sweden; Europe - Switzerland; Europe - United Kingdom

Why was it conducted at all?

What was the objective?

What was the outcome?

How long did the research prioritization take?

Which methods were used to identify research priorities?


How were the priorities for research identified exactly?

Which stakeholders took part?

How were stakeholders recruited?

Were stakeholders actively involved or did they just participate?