Description of Final Workshop to Set Research Priorities for Bipolar

JLA PSP final report (2016) full text summary PDF

For which topic were research priorities identified?

bipolar disorder

In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

No rationale provided.

What was the objective?

to work with patients, carers, family members and clinicians to identify uncertainties about bipolar causes, diagnosis, treatment, care, prevention and prognosis

What was the outcome?

a ranking list of 10 research questions

How long did the research prioritization take?

January 2014 - June 2016

Which methods were used to identify research priorities?

JLA method

How were the priorities for research identified exactly?

Step 1: setting up PSP: steering group established, stakeholders and partner organizations identified. Step 2: gathering research questions: through survey, 14492 questions submitted. Step 3: data processing: grouping research questions along topics, removing those out-of-scope, checking against literature, resulting in longlist of 71 questions. Step 4: interim ranking: via survey, participants were asked to consider the 71 questions and to create a list of 35 research questions in rank order. Step 5: final prioritization: workshop: prior to workshop participants were asked to review and rank shortlist of questions, small group discussion and small group rankings, plenary discussion resulting in top 15, further discussion on top 10

Which stakeholders took part?

People with a diagnosis of, or who thought they may have, bipolar, family members/ carers of people with bipolar, health professionals working with people with bipolar. Survey: 3283 participants. Workshop: 8 people with a diagnosis of bipolar, a representative from bipolar uk, 9 family members/ carers, and 9 healthcare professionals (1 GP, 3 psychotherapists and 5 psychiatrists).

How were stakeholders recruited?

Participants were recruited via partner organizations. As to the workshop, a large number of people who had participated in the second survey had asked to be kept informed, and the project team contacted them to seek expressions of interest in participating in the final workshop.

Were stakeholders actively involved or did they just participate?

Stakeholders not only participated but were also actively involved in the research prioritization process: They were part of a steering group.