Discovering the Research Priorities of People with Diabetes in a Multicultural Community: A Focus Group Study
For which topic were research priorities identified?
In which location was the research priority setting conducted?
Europe - United Kingdom
Why was it conducted at all?
Usually experts decide on which research is worthwhile, yet it is government policy to involve service users in research. There has been a lack of published research about involving patients from minority ethnic groups and people from deprived areas in setting research agendas. In this study we wanted to hear the voices of patients that are not often heard.
What was the objective?
to find out the research priorities of people with diabetes from an inner city community and compare these with current expert-led research priorities in diabetes
What was the outcome?
a list of 14 research questions
How long did the research prioritization take?
No information provided.
Which methods were used to identify research priorities?
How were the priorities for research identified exactly?
Step 1: focus groups: participants were asked to discuss important areas in their life and how these would influence research they would like to see carried out in diabetes. Step 2: data processing: thematic analysis
Which stakeholders took part?
39 adult patients with diabetes with varying ethnic backgrounds
How were stakeholders recruited?
Two GPs and one specialist diabetic nurse from the research team recruited patients from their lists by letter or telephone call. The eligibility criteria for invitation were a diagnosis of type 1 or type 2 diabetes and being aged 18 years or over.
Were stakeholders actively involved or did they just participate?
Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.