Towards a Consumer-Informed Research Agenda for Aphasia: Preliminary Work

Hinckley et al. (2014) full text summary PDF

For which topic were research priorities identified?

aphasia following stroke

In which location was the research priority setting conducted?

North America - USA

Why was it conducted at all?

Person-centeredness in clinical practice incorporates the values of clients into a shared decision-making approach. The values of person-centeredness can be extended into the realm of research when the views of consumers towards relevant and important research topics are sought. Work in other health domains has shown the importance of gathering consumer views on health care research, which ultimately extends into health care policy and practice.

What was the objective?

to report methods used successfully to gather the views of individuals living with aphasia on research topics they view as important

What was the outcome?

a ranking list of 22 research questions

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

meeting

How were the priorities for research identified exactly?

Step 1: meeting 1: researchers compiled representative list of current research topics for the Aphasia Support Group to review, Aphasia Support Group discussed summary of recent research. Step 2: Aphasia Support Group meeting 2: participants discussed the question: What would you like aphasia research to address?, small group discussion with nominal group technique, 3 small groups with 7-8 participants, followed by plenary session

Which stakeholders took part?

Individuals living with aphasia from aphasia support group. Little bit over 20 participants.

How were stakeholders recruited?

Participants were recruited via the Aphasia Support Group.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.