Engaging Patients in Health Research: Identifying Research Priorities Through Community Town Halls

For which topic were research priorities identified?

health research

In which location was the research priority setting conducted?

North America - Canada

Why was it conducted at all?

The vision of Canada's Strategy for Patient-Oriented Research is that patients be actively engaged as partners in health research. Support units have been created across Canada to build capacity in patient-oriented research and facilitate its conduct.

What was the objective?

to explore patients' health research priorities in the province of Newfoundland and Labrador

What was the outcome?

a list of 3 research areas

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

meeting

How were the priorities for research identified exactly?

Step 1: 8 town hall meetings, participants were asked to discuss two questions: "We are interested in what kind of health research projects are of interest to you. If you could think about a worry or concern about healthcare in this province that needs to be our top priority, what would that be? We want to know what you would like to see happen as a result of health research. As a patient, what are the outcomes you might want to see as a result of health research?", flipcharts used to record key ideas, in particular health research areas identified by participants. Step 2: data processing: thematic analysis

Which stakeholders took part?

Members of the general public in rural and urban settings across the province, 68 participants.

How were stakeholders recruited?

Posters were widely distributed to community organizations and posted in public locations (e.g., pharmacies, post office). Sessions were advertised on PRIIME and NL SUPPORT's websites, and research team members extended invitations to their networks. Local call-in radio programs were used, as well as promotion by community organizations through websites and word-of-mouth.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.