Priorities for Collaborative Research using Very Preterm Birth Cohorts
For which topic were research priorities identified?
very preterm birth
In which location was the research priority setting conducted?
Why was it conducted at all?
The need to promote research on the consequences of VPT birth was the motivation for the RECAP Preterm (Research on European Children and Adults Born Preterm) project, a European initiative to develop a research platform for VPT cohorts.
What was the objective?
to develop research priorities on the consequences of very preterm birth for the RECAP Preterm platform
What was the outcome?
a ranking list of 10 research topics
How long did the research prioritization take?
No information provided.
Which methods were used to identify research priorities?
How were the priorities for research identified exactly?
Step 1: collecting research priorities via iterative consultation with researchers and discussion sections of published cohort studies. Step 2: Delphi round 1: participants were asked to select their top 10 priorities from list of 28 topics. Step 3: Delphi round 2: participants were asked to re-rank topic and also asked for ideas for grouping topics
Which stakeholders took part?
Health professionals involved in the perinatal period, parents and preterm-born adults. Delphi round 1: 60 participants. Delphi round 2: 60 participants.
How were stakeholders recruited?
Each cohort provided between three and six suggestions for Delphi panel members. Nominated candidates had to be external to the RECAP Preterm project, have good knowledge of preterm birth and represent diverse perspectives, including those of health professionals involved in the care of children born very preterm, researchers, policy makers (eg, health agency directors), parents, parent representatives and preterm-born adults. Parents and preterm adults were also identified with the help of The European Foundation for the Care of Newborn Infants (EFCNI), a parents' association participating in RECAP Preterm.
Were stakeholders actively involved or did they just participate?
Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.