Determining Research Priorities for Adolescent and Young Adult Cancer in Australia

Medlow & Patterson (2015) full text summary PDF

For which topic were research priorities identified?

adolescent and young adult cancer

In which location was the research priority setting conducted?

Australia - Australia

Why was it conducted at all?

The Australian Youth Cancer Service (YCS) is part of a growing international movement to provide advocacy and better targeted healthcare services for adolescents and young adults (AYAs) with cancer. One of the key initiatives of the YCS is to determine and implement priorities within Australian AYA cancer research.

What was the objective?

to determine and implement priorities within Australian adolescent and young adult cancer research

What was the outcome?

a list of 28 research topics

How long did the research prioritization take?

No information provided.

Which methods were used to identify research priorities?

survey

How were the priorities for research identified exactly?

Step 1: literature review and researcher consultation: to determine a set of potential topics. Step 2: survey: participants were asked: Imagine you were given 100 units of research funding. How would you allocate funding across different types of Biomedical and Clinical Medicine Research to best improve outcomes for young people with cancer and their families? You can give all the funding to one type of research, or give different amounts of funding to different types of research. Please type funding amounts in the box next to each type of research.

Which stakeholders took part?

Consumers, and healthcare professionals. 101 participants: 75 health professionals (medicine, nursing, psychosocial research etc.) and 26 consumers (patients, survivors, parents and siblings).

How were stakeholders recruited?

Participants were contacted through email and CanTeen's national and divisional Facebook pages.

Were stakeholders actively involved or did they just participate?

Stakeholders were mere participants of the research prioritization process; they were not actively involved in the process.