The Sight Loss and Vision Priority Setting Partnership (SLV-PSP): Overview and Results of the Research prioritization Survey Process

Rowe et al. (2014) full text summary PDF

For which topic were research priorities identified?

sight loss and vision

In which location was the research priority setting conducted?

Europe - United Kingdom

Why was it conducted at all?

In the UK, it is estimated that almost two million people are affected by sight loss and this number is expected to double by 2050.1 Currently 50% of sight loss in the UK is avoidable, but there are also many unavoid able sight loss conditions. Whether it is to address childhood eye conditions or those affecting adults, research is needed to inform us about prevention, to develop new techniques for early diagnosis, and to develop new and more effective treatments for many eye conditions.

What was the objective?

to undertake a comprehensive, UK-wide, survey of patients, carers and clinicians to identify research questions and priorities to inform decisions of funding bodies and enhance the case for additional research funding

What was the outcome?

a ranking list of 120 research questions

How long did the research prioritization take?

April 2012 - May 2013

Which methods were used to identify research priorities?

JLA method

How were the priorities for research identified exactly?

Step 1: setting up PSP: steering group established, stakeholders and partner organizations identified. Step 2: collecting research uncertainties: survey asking: What question (s) about the prevention, diagnosis and treatment of sight loss and eye conditions would you like to see answered by research?, 4461 submissions. Step 3: data processing: submissions reviewed, out-of-scope removed, formatted into PICO format, check against evidence, resulting in 686 uncertainties in 12 eye disease categories. Step 4: interim ranking: survey asking participants to choose and rank top 10 uncertainties per category, resulting in shortlist of around 30 uncertainties per category. Step 5: prioritization: 12 workshops: 1 workshop for each eye disease, 153 questions were overall considered for final list, small group discussions with nominal group technique and small group rankings, followed by plenary discussions and rankings, resulting in lists of 10-11 priorities for each of the 12 eye diseases

Which stakeholders took part?

Patients, carers and eye health professionals. Survey: 2220 participants: 17% healthcare professionals: ophthalmologists, optometrists, orthoptists, ophthalmic nurses, opticians and people working in social care and rehabilitation services, over 60% people with sight loss or an eye condition. Interim ranking: 446 patients/carers and 218 professionals. Workshop: 155 participants across all 12 workshops: 78 patients and 77 clinicians.

How were stakeholders recruited?

The survey was disseminated by patient groups, professional bodies, at conferences and through the media, and was available for completion online, by phone, by post and by alternative formats (Braille and audio). For the interim survey, respondents from the initial survey, organizations and eye healthcare professionals with expertise in the eye diseases in 10 categories were invited.

Were stakeholders actively involved or did they just participate?

Stakeholders not only participated but were also actively involved in the research prioritization process: They were part of a steering group. The steering group consisted of patient representatives and eye health professionals.