Public and Patient
Involvement and Engagement
The focus ‘Involvement’ of the LBG OIS Center aims to involve citizens, patients and stakeholders as active participants in research in order to promote socially relevant research. We offer different public involvement (PI) implementation programs to embed public involvement activities in the Austrian research landscape.
The PI implementation programs build on the public involvement principles co-created with researchers and stakeholders described in the Patient and Public Involvement and Engagement’ ‘PPIE How to’ Guide for Researchers.
PPIE means research “with” or “by” patients and members of the public rather than “to”, ”about” or “for” them (INVOLVE). PPIE activities, aim to empower the public and people with lived experience through involving them in research. Projects benefit in terms of increased research quality and its impact on society: by addressing patients’ and the public’s needs and embracing their knowledge from personal experience or practice.
We support researchers and citizens providing funding infrastructure, facilitation and support services and a follow-up for public involvement initiatives in research
FUND: PI implementation programs fund public involvement initiatives on different levels of interaction - from involving the public to leading own initiatives - in three phases.
FACILITATE: we offer consultation and training opportunities for researchers and citizens, and a peer network to foster exchange knowledge in the PI community and learning from PI initiatives.
FOLLOW: we evaluate the outcomes and impact of PI initiatives to learn for future calls and programs.
The PPIE Implementation Program (2020-2023) supports planned involvement activities and fosters the formation of a cooperative network. Researchers and interested patients or citizens may contact the PPIE team regarding following offers:
For individual consultation please get in touch with the PPIE team to make an appointment. You might want to get counsel if you are planning to submit a proposal, need advice regarding PPIE activities, or do have other queries concerning patient and/or public involvement in research.
The PPIE 'How to' Guide was elaborated in a co-creation workshop with a diverse set of stakeholders. In the PPIE Guide you will find a detailed description about what PPIE is, why PPIE activities may serve your goals and the goals of those involved and how you can implement them in your projects.
If we caught your interest you can find the “How to” PPIE Guide in the Open-Access-Repository Zenodo: http://doi.org/10.5281/zenodo.3578321
Public engagement and involvement in research can take place at several levels: 1) as participation, e.g. in clinical studies, 2) engagement, e.g. dissemination of results, and 3) active involvement in research activities and steering. Each of these ways of engaging the members of the public in research entails different ethical requirements. This checklist is intended to help applicants and ethics committees to classify their public engagement and involvement activities and to reflect on the relevant ethical aspects. This checklist was developed in the context of an informal working group of Austrian ethics committees initiated by the Ludwig Boltzmann Gesellschaft (Austria). However, this checklist does not replace the requirements of the ethics committee to which the application is submitted.
Research should benefit society at large. Involving citizens those who are affected by research may not only increase the quality, but can also push research towards generating greater societal benefits and relevant outcomes for citizens. Including citizens in research also has ethical implications, which necessitate structured guidance on ‘how to’ meaningfully involve them. In our project, we invited a multi-stakeholder group consisting of researchers from multiple disciplines, citizen scientists, youth and patient advocates to co-create a guide on ‘how to’ meaningfully involve citizens in research. In five consecutive workshops, we discussed how the characteristics of interactions between researchers and citizens (e.g., building trustful relationships and communication) and what a possible project steering structure enabling meaningful public involvement in research could look like. As a result of these workshops, the PPIE ‘How to’ Guide for Researchers was developed to support the implementation of ‘Patient and Public Involvement and Engagement’ (PPIE) activities and informed a PPIE Implementation Programme funding public involvement activities in Austria.