Involvement

Public and Patient 
Involvement and Engagement

The focus ‘Involvement’ of the LBG OIS Center aims to involve citizens, patients and stakeholders as active participants in research in order to promote socially relevant research. We offer different public involvement (PI) implementation programs to embed public involvement activities in the Austrian research landscape. 

The PI implementation programs build on the public involvement principles co-created with researchers and stakeholders described in the Patient and Public Involvement and Engagement’ ‘PPIE How to’ Guide for Researchers

PPIE means research “with” or “by” patients and members of the public rather than “to”, ”about” or “for” them (INVOLVE). PPIE activities, aim to empower the public and people with lived experience through involving them in research. Projects benefit in terms of increased research quality and its impact on society: by addressing patients’ and the public’s needs and embracing their knowledge from personal experience or practice.

We support researchers and citizens providing funding infrastructure, facilitation and support services and a follow-up for public involvement initiatives in research

Fund, Facilitate, Follow

FUND: PI implementation programs fund public involvement initiatives on different levels of interaction - from involving the public to leading own initiatives - in three phases.

  • Phase I: involving patients and the public in research activities
  • Phase II: supporting local public partnerships in research projects (planned)
  • Phase III: supporting public spaces and co-led research groups by the public (planned)

FACILITATE: we offer consultation and training opportunities for researchers and citizens, and a peer network to foster exchange knowledge in the PI community and learning from PI initiatives.

FOLLOW: we evaluate the outcomes and impact of PI initiatives to learn for future calls and programs.

For more information visit our homepage and sign up for the newsletter to be always up to date. 


PPIE Program

Our support

The PPIE Implementation Program (2020-2023) supports planned involvement activities and fosters the formation of a cooperative network.  Researchers and interested patients or citizens may contact the PPIE team regarding following offers:

  • Pre-check online tool to assess your current involvement activities,
  • individual consultations on applications and implementation strategies during the project,
  • training opportunities such as webinars and co-creation workshops with stakeholders,
  • and peer network as a learning opportunity,
  • methodological expertise and support, for example facilitating a co-creation workshop, and
  • the PPIE pilot call 2020.

For individual consultation please get in touch with the PPIE team to make an appointment. You might want to get counsel if you are planning to submit a proposal, need advice regarding PPIE activities, or do have other queries concerning patient and/or public involvement in research. 


Resources

The PPIE 'How to' Guide was elaborated in a co-creation workshop with a diverse set of stakeholders.  In the PPIE Guide you will find a detailed description about what PPIE is, why PPIE activities may serve your goals and the goals of those involved and how you can implement them in your projects. 

If we caught your interest you can find the “How to” PPIE Guide in the Open-Access-Repository Zenodo: http://doi.org/10.5281/zenodo.3578321

PPIE Publications

Kaisler, R.E., Missbach, B. (2020). Co-creating a patient and public involvement and engagement ‘how to’ guide for researchers. Res Involv Engagem 6(32): online

Access: https://doi.org/10.1186/s40900-020-00208-3

Research should benefit society at large. Involving citizens those who are affected by research may not only increase the quality, but can also push research towards generating greater societal benefits and relevant outcomes for citizens. Including citizens in research also has ethical implications, which necessitate structured guidance on ‘how to’ meaningfully involve them. In our project, we invited a multi-stakeholder group consisting of researchers from multiple disciplines, citizen scientists, youth and patient advocates to co-create a guide on ‘how to’ meaningfully involve citizens in research. In five consecutive workshops, we discussed how the characteristics of interactions between researchers and citizens (e.g., building trustful relationships and communication) and what a possible project steering structure enabling meaningful public involvement in research could look like. As a result of these workshops, the PPIE ‘How to’ Guide for Researchers was developed to support the implementation of ‘Patient and Public Involvement and Engagement’ (PPIE) activities and informed a PPIE Implementation Programme funding public involvement activities in Austria.

THE TEAM

Raphaela Kaisler

Lead Public and Patient Involvement in Research 

Thomas Palfinger

Program Manager Public and Patient Involvement in Research

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